CCW Logo
© 1996-2003

Site Map
Cancer Types
Support & Information
Health Professionals

National Childhood Cancer Organisations
CancerIndex CCW Home Menu>

National Childhood Cancer Organisations (29 links)

See also National Cancer Organisations (general) (in InterNet Resources for Cancer)
See also List of Resources by Country (general) (in InterNet Resources for Cancer)
  • American Society of Pediatric Hematology/Oncology (USA) ASPHO was founded in 1981 and is a professional society dedicated to the study and treatment of childhood cancer and promote care, education and research. The web site includes details of membership, meetings, resources etc
  • Association of Pediatric Oncology Nurses (USA) APON is a non-profit organisation formed in 1976 and has members in the US, Canada, and other countries. The site provides details of services for members including a journal, newsletter, publications, and continuing education.
  • Barncancerföreningarnas Riksförbund - Children Cancer Foundation of Sweden. (Sweden) Swedish language.
  • Childhood Cancer Registry for Belarus (University Children's Medical Center, Minsk, Belarus) The registry is supported by the non-profit Belarus-American Child Health Foundation. 70% of the radioactive fallout from the 1986 Chernobyl Power Plant explosion fell on Belarus.
  • Childhood Cancer Research Group (UK) The CCRG, based in Oxford, maintains the UK National Childhood Tumour Registry. The group is involved in a range of epidemiological and follow-up studies of childhood cancer. This site lists staff, research projects, and publications.
  • Children's Brain Tumor Foundation (USA) The CBTF is a non-profit organization founded by families, friends and physicians of children with brain tumors; the foundation raises funds for research. This site includes details of services and events, and articles about brain tumours
  • Children's Brain Tumour Research Centre, Nottingham The Centre set up in 1991 to provide a centre of excellence for the treatment and study of tumours of the brain and spine in children. The Web site includes patient information, details of research, and a glossary.
  • Children's Cancer Foundation of Singapore (Singapore) The CCF was formed in 1992 to support families with children suffering from cancer in Singapore. This site includes childhood cancer information, feature stories, resources, a Kid's page, and links.
  • Children's Oncology Goup (COG) COG was formed by the merger of 4 major research organizations (CCG, POG, NWTS and IRSG). Member institutions treat nearly 90% of children with cancer in the USA and Canada, there are also centers in Australia and Switzerland.
  • CHOC Childhood Cancer Foundation South Africa A national parents group, founded in 1979. The Web site includes details of events, fundraising, research and information about childhood cancers and treatments.
  • European Intergroup Ewing's Sarcoma Study Historical details of the EICESS '92 trial, now closed to entry. EICESS is a collaboration of groups and treatment centres in Germany, UK, Netherlands, and elsewhere.
  • Foundation for the Children's Oncology Group (formerly the National Childhood Cancer Foundation) (USA) The FCOG is a non-profit organization which supports pediatric cancer treatment and research projects in association with The Children's Oncology Group (COG). This site includes information, inspiring stories, news, and links to WWW resources.
  • Gesellschaft fur Padiatrische Onkologie und Hamatologie (GPOH) (Germany) The GPOH is a professional society of specialist doctors treating children's cancer in Germany. The activities of the GPOH include running clinical trials. German language.
  • International Confederation of Childhood Cancer Parent Organizations ICCCPO was founded in 1994 and is a network of organizations of parents of children with cancer aiming to share information and experience to improve access to the best possible care for children with cancer around in the world.
  • International Society of Paediatric Oncology - Societe Internationale d'Oncologie Pediatrique (SIOP) This is a professional membership based organisation founded in in 1969. The Web site has details about the Society, congresses, clinical trials, and respective committees.
  • Italian Federation of Pediatric Oncology Parent Associations (Home page in English language) The federation was founded in 1995 and brought together 20 Parents Associations involved in support for childhood cancer.
  • National Alliance of Childhood Cancer Parents Organisations (UK) This is an association of parent run organisations which have common aims of working together with families and health professionals to support and provide advocacy for children with cancer. The Web site includes details of NACCPO and member groups.
  • National Children's Cancer Society (USA) NCCS is a non-profit organization founded in 1987 which provides direct financial support to children (to age 18) with cancer and their families. The site includes details of the NCCS International Program, events, services and donations.
  • National Children's Leukemia Foundation (USA) The NCLF is a non-profit organization providing services, support, and referrals for leukemia patients and their families.The site provides details of their telephone help line, and information on various topics related to childhood leukemia.
  • National Retinoblastoma Research and Support Foundation (USA) A support group established by parents and friends of children treated at Bascom Palmer Eye Institute. The NRRSF aims to establish a national network to provide support to parents with children affected by retinoblastoma.
  • National Wilms' Tumor Study Group (USA) The NWTSG is a national collaborative group established in 1969. NWTSG runs clinical trials and other research with the aim of improving treatment for Wilms' tumor. The site includes a detailed bibliography, FAQ and patient information.
  • Neuroblastoma Children's Cancer Society (USA) The NCCS is a non-profit organization dedicated to fund-raising, support, research, and advocacy for children with neuroblastoma and families. Members of the society are mainly parents or relatives of children diagnosed with neuroblastoma.
  • Neuroblastoma Society, The (UK) The Neuroblastoma Society is a charity offering parental support to families with children with neuroblastoma. The web site includes a downloadable booklet for parents, a newsletter, medical update, and other information.
  • New Approaches to Neuroblastoma Therapy (NANT) (USA) This is a consortium of Universities and Childrens Hospitals funded by the National Cancer Institute to test new therapies for neuroblastoma, in phase I trials. The Web site includes details of research, member institutions, news etc.
  • Nordic Society of Pediatric Haematology and Oncology The site includes details of NSPHO, publications, links, details of meetings, a section for young doctors etc.
  • Pediatric Oncology Group (USA) POG is a National Cancer Institute-sponsored cooperative clinical trials group of over 100 centers dedicated to controlling cancer among children and adolescents. The site details protocols, institutions, links, plus a members area.
  • Retinoblastoma Society, The (UK) A national organisation providing support and information for people with retinoblastoma and their families. The Society has a network of regional co-ordinators and produces a newsletter for families affected by retinoblastoma.
  • The Children’s Cause, Inc (USA) Founded in 1999 to provide an independent consumer-based advocacy voice of families and survivors on national policies affecting research, health care, and services for childhood cancer. The Web site includes policy issues, news from Congress etc.
  • United Kingdom Children's Cancer Study Group The UKCCSG is a national organisation treating children with cancer at 22 specialist centres throughout the UK. Activities include clinical trials, research and professional development. The web site includes a parent's guide and newsletter.

Back to the Menu

 © 1996-2003
This page last updated: Sat 11 Jan 2003 Home