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What's New ?
Recent additions to this guide:
 Ellie Savage Memorial Trust
The Trust provides a network of support and information for children with brain tumours and their families in East Anglia and raises money for research. The Web site includes information about brain tumours, local support groups, events and news.

 Time for Life
A support organization for childhood cancer with a recource centre in West Hartford, Connecticut. The site includes details of programs, events, summer camp. Time for Life was founded in 1990 by a parent of a young girl with myelodysplastic syndrome.

 Asociación Riojana de padres de niños con cáncer
(Spain) A support group established by parents of children from La Rioja. The web a Spanish language on-line parent´s guide.

 Joy and Hope for Texas
A non-profit organization dedicated to children with life-limiting illnesses and their families. The Web site includes details of community awareness, education and supportive programs, events, news and resources.

 Tribute in loving memory of Sam Alimentato
This is the memorial Web site of Sam who at 15 was diagnosed with stage 3 Non-Hodgkin's Lymphoma. The site includes Sam's story, pictures and related links.

 Joey Bergsma Retinoblastoma Awareness Page
This site has been lovingly crafted by the Grandfather of Joey, who died from metastatic retinoblastoma, age 3. It aims to raise awareness of retinoblastoma and advocates infant eye screening to detect retinoblastoma and other eye problems.

 CHOC Childhood Cancer Foundation South Africa
A national parents group, founded in 1979. The Web site includes details of events, fundraising, research and information about childhood cancers and treatments.
Faith was diagnosed with acute lymphocytic leukemia (ALL), at age 3 yrs in April 2002. This Web site, by her parents, includes Faith's story, updates, gallery, a guest-book and other features.

 James Birrell's Web site / James Birrell Fund for Neuroblastoma
James has been battling with neuroblastoma since he was 3. His adventurous Web site includes updates, pictures, information about neuroblastoma, a guestbook, and fundraising linked with the Sick Kids Hospital of Ontario.

 Friends For Steven
A non-profit organization based in Buffalo Grove, IL, founded in 1997 to raise awareness and funds for research into treatments for neuroblastoma. The site has information about neuroblastoma, events, and donations.

 The Ricky Wannberg Memorial Page
This is the memorial Web site for Ricky from Western Australia who died from a PNET brain tumour in 1996. The Web site includes pictures, poems and dedications to Ricky.

 3 Boys Legacy Inc.
The Foundation is based in Western Australia and was established in 1998 to promote research into childhood brain cancer. The Web site includes details of events, sponsorship and research projects.

 Informacion Sobre Neuroblastoma y Cancer Infantil
A personal Web site about neuroblastoma and other childhood cancers. It includes information for parents and the public. The Web site is in Spanish and also has English and French language support.

 Emmanuel Cancer Foundation
A not-for-profit public agency established in 1983 to help preserve the quality of life for families in New Jersey with a child who has cancer. Services include professional counseling, advocacy and some limited financial assistance.

 Children's Leukaemia and Cancer Research Foundation (Inc)
The Foundation was formed by parents of children with cancer, concerned supporters and with the support of the children's hospital to establish a childhood leukaemia and cancer research facility in Western Australia.

 International Society of Paediatric Oncology - Societe Internationale d'Oncologie Pediatrique (SIOP)
This is a professional membership based organisation founded in in 1969. The Web site has details about the Society, congresses, clinical trials, and respective committees.

 Fanconi Canada - Canadian Fanconi Anemia Research Fund
A non-profit organization which raises money for research into finding a cure and/or treatments for Fanconi Anemia. The Web site includes information about FA, news, FA family stories, and details of funded research.

 Children's Neuroblastoma Cancer Foundation
A non-profit organization providing support, advocacy and funding medical research projects on neuroblastoma. CNCF is based in Bloomingdale, IL, the Web site includes information about the organisation, news, events, donations and resources.

 The Dougy Center, The National Center for Grieving Children and Families
(USA) The Center provides support and care in Portland, Oregon and the surrounding region loving to children, teens, and their families who are grieving a death. It also provides support and training, nationally and internationally to carers.

 Amsterdam School of Paediatric Oncology
(Netherlands) ASPO is an initiative of the Department of Paediatric Oncology in the Emma Kinderziekenhuis AMC Hospital. The Web site includes details of courses Masterclasses and Graduate courses in paediatric oncology.

 National Alliance of Childhood Cancer Parents Organisations
(UK) This is an association of parent run organisations which have common aims of working together with families and health professionals to support and provide advocacy for children with cancer. The Web site includes details of NACCPO and member groups.

 Children's Oncology Goup (COG)
COG was formed by the merger of 4 major research organizations (CCG, POG, NWTS and IRSG). Member institutions treat nearly 90% of children with cancer in the USA and Canada, there are also centers in Australia and Switzerland.

 Captain Chemo's Adventures
(Royal Marsden Hospital, UK) A Web site and computer game for young people with cancer. Captain Chemo is a cartoon character created by a former patient. Here you can help to shoot and destroy tumours, answer questions about cancer and more.

 Childrens Hospital Los Angeles - Ewing's sarcoma / pPNET genetics study
A confidential study investigating the role of genes in Ewing's sarcoma looking for participation by patients and their parents and siblings from around the world. DNA is extracted from mouthwash or blood samples from volunteers.

 Joshua's Tumour Site
(UK) Joshua was diagnosed with stage 3 MYCN amplified neuroblastoma in May 2000. The Web site, by his parents, includes pictures and a detailed treatment plan and news updates.

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