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Patient's Home Pages
CancerIndex Home - Guide to Internet Resources for Cancer Home>

Patient's Home Pages (126 links)

  • Cancer Kids - Stories List of home pages and links. "Helping children with cancer tell thei stories to the world"
  • List of personal home pages of cancer kids. (ACOR Pediatric Oncology Resource Center) a list of links to the home pages of cancer kids and their families. The list is maintained by Patty, mother to James who has leukemia. It includes the kid's first names, age-group, and type of cancer.
  • A page for Sara - Desmoplastic Small Round Cell Tumour (Canada) a personal home page of a patient with DSRCT including detailed treatment diary, links etc.
  • Alices' Breast Cancer Info and Links from a breast cancer survivor
  • Alistair's Home Page Alistair was diagnosed with Rhabdomyosarcoma, age 11. This page tells his story with information about the disease and treatment and how Alistair has done since finishing therapy in February 1996. Great pictures and art work.
  • Angel Wings - A Memorial to Michael A site about Michael who was sadly lost after developing a brain tumour. The site includes Michael's story, poems by mother; Martha, and links.
  • Anthony and Nicholas' Home Page Nicholas was diagnosed with Langerhans Cell Histiocytosis at age 2 months in 1998. The page includes progress reports and links to information about LCH.
  • Art's Leukemia and Bone Marrow Transplant Links (by Art Flatau - an survivor of AML) Many leukemia links
  • Ashley's Story: Cancer, Courage, Hope ...Victory ! Most of Ashley's brain tumour (medulloblastoma) was removed by surgery in early 1997, these pages by her father include information and pictures with a detailed diary of her treatment with chemotherapy and radiotherapy.
  • Austin's Place home page of Austin, age 15, who has leukemia
  • Bailey Hope Kelly's Home Page Bailey was diagnosed with neuroblastoma March, 2001. This Web site includes pictures of Bailey and her family, updates, details of treatments including high dose chemotherapy and a stem cell transplant.
  • Barb's Leukemia Links Leukemia links from a CLL survivor.
  • Brandon' Page This is a memorial to Brandon who was lost to neuroblastoma in 1999. Brandon who was diagnosed with neuroblastoma at the age of 3 in 1997. The site includes information about Brandon's treatment, pictures and poems.
  • Breanna's Page (USA) Brenna was diagnosed with neuroblastoma at 7 years old.This site has been set up by a close friend of her family and includes progress reports about Brenna's treatment, links, her awards and guestbook.
  • Breast Cancer Awareness: Two Sisters' Stories (USA) This is the site is of two twins and their battle against breast cancer. Kelly's story shows the importance of breast cancer awareness and self examination, Tricia's story the possibilities of prevention where there is a family history of BC.
  • Breast Cancer, Say It!!, Fight It!!, Cure It!!, (USA) a site by Riah, a breast cancer survivor
  • Bren's Place - A longterm survivor of Wilms' tumour (USA) Bren was diagnosed with Wilms' tumour at age 11 months in 1956 at a time when few children survived cancer. The pages includes Bren's experience with Wilms' tumour and long-term effects of radiotherapy, related links etc.
  • Brian's Acoustic Neuroma UK Pages (UK) This site compiled by a patient with acoustic neuroma includes information about the disease, personal perspectives, resources etc.
  • Brianna's Home Page - diagnosed with a PNET Brain Tumor in 1996, age 6 diary updates, information, pictures and links
  • Cancer of the Larynx - Information site (USA) is a patient produced site providing information and assistance for laryngectomees, their friends, and families.
  • Cancer Survivors OnLine (USA) a site produced by a family affected by cancer and provides information, resources, and links related to various cancer topics.
  • CancerPoint - Virtual Cancer Support Centre (Edinburgh UK) based on the collected cancer experiences of Andrea and Max Blinkhorn.
  • Cassandra's Home Page Home page of a child diagnosed with Rhabdomyosarcoma
  • Cathy's Esophageal Cancer Cafe This colourful site includes details of an EC mailing list, details about the disease and its causes, treatments, food and nutrition, and links to related resources.
  • Christian Hernandez Appeal page for young boy from Honduras, diagnosed with retinoblastoma, age 3.
  • Chrystal's Home Page / Melanoma Story (USA) This patient produced site includes a description of life with metastatic malignant melanoma and links to various aspects of skin cancer.
  • Dan's Melanoma Page (USA) personal experience of Dan who had a large melnoma on the neck/shoulder excised in 1997.
  • Daniel Woods Memorial Fund (County Tyrone, Northern Ireland) The web site helps raise funds for the Neuroblastoma Society. It is a memorial to Danniel who was lost to neuroblastoma in 1999 and includes a photo album, guest book and information about money raised.
  • Daniel's FISH Fund / Philadelphia Positive Leukaemia (UK) Daniel, age 2 was diagnosed with Philadelphia positive leukaemia in 1994. This web site includes summaries of the disease, FISH, research, and photographs of Daniel. The fund supports research at the Royal Free Hospital, London
  • Darian's Page (USA) Darian was a 2 yr old girl from Indiana who was diagnosed with neuroblastoma in January 1999. The pages include pictures and a detailed diary of Darian's treatment. She sadly lost her battle with the disease.
  • Dave's Happy Little Hodgkin's Page Humerous patient's home page: "Hi! I'm Dave, I'm a 15 year old white male half bald with Hodgkins Disease....."
  • Di-My Cancer Story This is the home page of Diane who has experienced both Hodgkin's disease and then breast cancer, The site includes details of the cancers and treatments received together with secondary issues related to radiation therapy.
  • Dominique's Web Site This is the memorial Web site of Dominique, from Anchorage, who was diagnosed with neuroblastoma just before her 2nd birthday in April 2001. The site includes a journal, links to medical information, a guest book and other information.
  • Doris Gowen's Leukemia Home Page Features 12 year-old Doris' fight with acute lymphocytic leukemia, her chemotherapy, relapse, BMT, early post-transplant relapse and participation in a clinical trial using immunotoxin B43-PAP. She died May 22, 1999.
  • Duggan's Home Page - Support for Pituitary Tumor Patients
  • Emma Koenkev's home page A brain tumor patient
  • Emma' Home Page Emma, age 2, was diagnosed with stage 3 neuroblastoma in 1997. This site has been set up by her parents and includes an overview of neuroblastoma, Emma's treatment updates, photogallery and friends.
  • FaithsFight.com Faith was diagnosed with acute lymphocytic leukemia (ALL), at age 3 yrs in April 2002. This Web site, by her parents, includes Faith's story, updates, gallery, a guest-book and other features.
  • Fanconi-Anaemia.co.uk This Web site has been set up by Roberto whose daughter was diagnosed with FA, in conjunction with other FA families in the UK. It includes information on FA, advice on dealing with FA and other resources.
  • George Allen's Colon Cancer Information pages by George Allen whose wife Joyce had stage IV colon cancer
  • Granny Barb's and Art's Leukemia Links -Where to get Leukemia Information on the Internet A site by Barbara Lackritz and Art Flatau. The site is full of information and links for leukemia and BMT.
  • Help Jesse Jesse has bi-lateral Retinoblastoma that spread to his spinal fluid and was treated with a bone-marrow transplant using his own cord blood. The Web site includes updates on Jesse, pictures, links to medical and other information about retinoblastoma.
  • Hodgkin's - Patient Stories (Planet Blortland)
  • Hodgkin's Disease Information Page (Slovenia) Information produced by a survivor.
  • In Memory of Jamie Gregory - A Parent's Story (UK) Jamie was lost to leukaemia in 1999. This site by his parents includes details of their personal experiences, information sources, summary of ALL, pictures etc. There is a link to Jamie's own web pages.
  • In Memory of Yossi Chaim In memory of Yossi, who was diagnosed with leukaemia (ALL) in 1997. This site has been set up by his parents and includes detailed updates of Yossi's experience of chemotherapy and bone marrow transplant.
  • Jacob's Page (USA) "Jacob, a active toddler, has been receiving treatment for neuroblastoma..." This page includes pictures of Jacob, treatment updates, and links to related sites.
  • James Birrell's Web site / James Birrell Fund for Neuroblastoma James has been battling with neuroblastoma since he was 3. His adventurous Web site includes updates, pictures, information about neuroblastoma, a guestbook, and fundraising linked with the Sick Kids Hospital of Ontario.
  • James vs Leukemia James was diagnosed with Leukemia, age 17 in April 1997. These pages are his mother's personal account of how leukemia has affected their lives. The site includes a log of James' treatment, summary of leukemia, "feeding the chemo kids" and other info
  • Jessica's Story (Parents Of Kids With Cancer) Jessica was diagnosed with Wilms' tumor and lung metastases in 1997. This page by Jessica's mother tells her story with pictures and details of treatment.
  • Joey Bergsma Retinoblastoma Awareness Page This site has been lovingly crafted by the Grandfather of Joey, who died from metastatic retinoblastoma, age 3. It aims to raise awareness of retinoblastoma and advocates infant eye screening to detect retinoblastoma and other eye problems.
  • John's Funny Family This site is a celebratory remembrance of John Lyons who died from a grade IV glioblastoma multiforme at age 35. It includes John's journal, brain tumor links, poems of insprations and the writings of Jenny, his wife, who maintains the site.
  • Jonathan's Home Page Jonathan was diagnosed with neuroblastoma at 22 months old. The pages include pictures and a detailed journal of Jonathan's treatment of chemotherapy following by monoclonal antibodies starting in July 1999.
  • Josh Eaton's Home Page A 7 year old who has had a bone marrow transplant for Philadelphia chromosome positive acute lymphoblastic leukemia. Sadly Josh passed away but the web pages remainon-line to provide information about BMT for others.
  • Joshua's Home Page (USA) Josh was diagnosed with stage 4 neuroblastoma just before his 3rd birthday in July 1999. These pages include Joshua's story, summary and neuroblastoma links.
  • Joshua's Tumour Site (UK) Joshua was diagnosed with stage 3 MYCN amplified neuroblastoma in May 2000. The Web site, by his parents, includes pictures and a detailed treatment plan and news updates.
  • Jule's Home Page - A Page for CancerKids by a CancerKid Pages of an ALL patient from Australia
  • Kaitlyn's Page Kaitlyn was diagnosed with stage 4 neuroblastoma at age 4. Her page includes a picture, guestbook, details of family and friends etc.
  • Kelly's Page - diagnosed with medulloblastoma in 1997, age 12 yrs Pictures and treatment updates.
  • Kieran's Web Page - diagnosed with astrocytoma in August 1999, age 3. (Glasgow, UK) This page has details of Kieran and his diagnosis and treatment with surgery and chemotherapy for a low grade astrocytoma. There is an update of Kieran's treatment, guest book, summary of medical information and links.
  • Kirsten's Journey (USA) this page is about Kirsten who was diagnosed with neuroblastoma at age 6 months and treated at the Children's Hospital of Philadelphia. The site includes a journal of Kirsten's treatment, timeline, and links.
  • Kurtis Edward Seaman Kurtis was diagnosed with Neuroblastoma in August 1998. He fought long and hard but lost his battle just before his 5th birthday. The Web site includes a journal, photographs and guestbook.
  • Kyle's fight with Cancer Kyle was diagnosed with Burkitt's Lymphoma at age 13 yrs, in 1996. This site is by his brother, Kevin, including pictures, details of Kyle's experience, treatment and remission.
  • Kyle's Story - Kyle was diagnosed with medulloblastoma in 1995 his story !
  • Laurel Simmons' Home Page (BMT / Leukemia info) Laurel had a bone marrow transplant in 1987 for CML. This is Laurel's home page including the BMT-Talk discussion list page and links to cancer resources.
  • Levi's Story (USA) Levi, a young man from Oregon, was diagnosed with Non-Hodgkin's Lymphoma in 1997. The pages include his experience with diagnosis with NHL, treatment, and life in remission.
  • Lindsey Gothard's home Page Lyndsey is 11 and has myelodysplasia.
  • Lisa Sparks' Home Page / Hodgkin's links
  • Living with Liver Cancer by Paul Huckabay
  • Lung Cancer Online (USA) By Karen Parles, a medical librarian who was diagnosed with lung cancer at the age of 39 . The site includes sections on finding the best care, services and support, patient information, organisations and links.
  • Maddy's Story (in Band-aides and Blackboards) the story of Maddy who was diagnosed with Ewing's sarcoma of the femur with lung metastases at age 13.
  • Matthew's Page (USA) Matthew was diagnosed with Stage 3 Wilms' tumor at age one then relapsed in 1997 at age 2-1/2, possibly with renal cell carcinoma . After further treatment he went back into remission. The Web site includes detailed treatment updates.
  • Melanoma Patients' Information Page (by Jeff Patterson, USA) a site with information about melanoma, abstract searches, clinical trials, bulletin board, chat room, patient's network / register, links etc.
  • Melinda's Home Page A page devoted to Cancer Kids and their caregivers
  • Mike's "Life with Retinoblastoma" By a parent with a young child who has retinoblastoma. Information, pictures and links.
  • Mouth Cancer: Mouth Tongue and Teeth (UK) Paul was diagnosed with tongue cancer following a routine dental check. This is a good humoured and detailed personal account of diagnosis, surgery, radiotherapy and long-term effects of treatment which will be of interest to others with oral cancer
  • Multiple Hereditary Exostoses and Chondrosarcoma, the Genetic Connection A site created by a chondrosarcoma survivor who shares her personal journey from diagnoses to recovery. The Web site includes Elizabeth's family history of MHE, her treatments together with information and links about the condition.
  • Multiple Myeloma Survivor's Stories by June Brazil
  • My experience with breast cancer (ACOR) A web site by a patient detailing her experinence following left-breast mastectomy for ductal carinoma. Illustrated, with an emphasis on reconstruction.
  • My Wilms' Tumor Story (Maryland, USA) Karen was diagnosed with stage 1 Wilms' Tumor in 1954 at the age of 18 months. Karen was told she was one of the fist long-term survivors of WT, this is her story including effects of RT, her active life, grandchildren, links etc.
  • Naoko's Page (Japan) These pages have been created by Naoko's mother. English and Japanese language with their experiences of diagnosis and treatment.
  • Nava's Story - Beckwith Weidemann Syndrome Read Nava's story in the Band-Aides and Blackboards Web site.
  • Neuroblastoma Children's Cancer Society - Wall of Fame pictures and stories of children with neuroblastoma
  • NHL Cyber family The Cyber Family are a group of patients and family providing information and support for those diagnosed with NHL. There are details of mailing lists, information, FAQ, "family album", links etc.
  • Non-Hodgkins Lymphoma site (UK) Home pages of Janet who was diagnosed with NHL in 1996. The site includes information about NHL, links, and personal information.
  • Our Story - Johnny and Kimberlee Hough as told by Kimberlee As told by Kimberlee whose husband has Malignant Mesothilioma
  • Outlook - Life Beyond Childhood Cancer (USA) This site by a survivor of childhood cancer and is supported by University of Wisconsin Children's Hospital. Outlook aims to empower survivors and includes information about health, insurance, emplyment and other issues +FAQ, links etc.
  • Papillary Thyroid Cancer: An Inquiring Patient's Guide (UK) A site by Julia Lawrence who was diagnosed with the disease in 1999 at age 32. The site aims to fill a gap in information about thyroid cancer on the Web, it includes Julia's personal experience, FAQ, links and other information.
  • Prostate Pointers (By Gary Hukabay) This site contains information, articles, and many links about prostate cancer and general prostate problems.
  • Reyanna's Page (UK) Home page of Reyanna, who was diagnosed with stage 4 neuroblastoma, at age 5 in 1999. The pages include her story, pictures etc.
  • Robert and Karen's Home and Links Page Thiese pages include information about Robert amd Karen's son Matthew, who was diagnosed with Ewing's sarcoma in 1996. There are pictures of Matthew along with his poems, plus derails of treatments recieved and links to related sites.
  • Sarah's Home Page (USA) Sarah was 2 months old when she was diagnosed with stage 2A neuroblastoma in August 1998. The pages include a journal of Sarah's treatment, and pictures of Sarah and her family who live in Oklahoma City.
  • Sarah's Retinoblastoma HomePage (Australia) Sarah was diagnosed with retinoblastoma at age 4 yrs. The site includes information and pictures of Sarah.
  • Sebastian's Story A memorial to Sebastian who was diagnosed with neuroblastoma at age 17months. The site includes 11 months of family newsletters with details of their experience with pictures. "He only needed a little time to make an impact on this world"
  • Shared Experience a searchable database the experiences of cancer patients and their caregivers created to provide a larger perspective on Cancer and Cancer Support. The database contains details of what others have said or you can add your own experience.
  • Shelby Miguel's Website The Web site includes details of Shelby’s courageous fight against Burkitts lymphoma, diagnosed in 1999 when she was 4 years old. The site includes pictures of Shelby then and now, supportive words for other parents, a Guest Book and other information.
  • Skin Cancer - The Facts (UK) this site contains information about various types of skin cancer, treatment, skin protection, links and an on-line chat room. It has been created by Jason who had a rodent ulcer (basal cell cancer) to promote awarenes of skin cancer.
  • Squirrel Tales: Practical Tips and Encouraging Ideas for Parents of Children with Cancer (USA) By Colleen O'Brien whose daughter was diagnosed with leukemia when she was 2 years old. This site includes encouraging stories and practical tips (eg understanding health professionals, caring at home, etc), glossary, newsletter, and links.
  • Stephanie's Fight Against Leukemia (Ontario, Canada) This is the home page of Stephanie, who was diagnosed with Acute Lymphoblastic Leukemia at age 4. The site by Stephanies's Dad includes a daily diary, pictures, and personal accounts of chemotherapy.
  • Steven's Page Steven, age 5 was diagnosed with acute lymphocytic leukemia in January 1999. This page has been set up by his Grandfather, it includes a message board with Steven's treatment updates and leukemia related links.
  • Stop Non-Hodgkin's Lymphoma ! This site has been produced by Trudi whose husband was diagnosed with NHL. The site includes a NHL message board, NHL links, related events, prayers for patients, a NHL Heroes page, and "what you can do to help" with links to lymphoma organisations.
  • Stories and Faces: Bone Cancer (Pediatric Oncology Resource Center) List of home pages of children affected by bone cancer
  • Stories and Faces: Brain Cancer (Pediatric Oncology Resource Center) List of home pages of children affected by brain tumors.
  • Stories and Faces: Leukemia (Pediatric Oncology Resource Center) List of home pages of children affected by leukemia
  • Stories and Faces: Lymphoma (Pediatric Oncology Resource Center) List of home pages of children affected by lymphoma
  • Stories and Faces: Neuroblastoma (Pediatric Oncology Resource Center) List of home pages of children affected by neuroblastoma
  • Stories and Faces: Rhabdomyosarcoma (Pediatric Oncology Resource Center) List of home pages of children affected by rhabdomyosarcoma
  • Stories and Faces: Wilms' Tumor (Pediatric Oncology Resource Center) List of home pages of children affected by Wilms' tumors.
  • Taber's Journey This is the Web site of Taber from British Columbia, Canada. The site includes a journal of Taber's experiences and his treatment for leukemia, photo gallery, and links.
  • The Bald Eagle's Cancer Page a cancer survivalist's page by Peter who was diagnosed with invasive colonic adenocarcinoma. Includes news, treatment details, links, bibliography etc.
  • The Cancer Club The Cancer Club, based in Minneapolis, was created by Christine in 1995 in response to her experience with breast cancer. Information and Newsletter - with humour !
  • The Pancreatic Duct This patient produced site contains information and assistance for the pancreatic cancer patient and their loved ones; the site has links to information on various aspects of prostate cancer and treatment, emotional support, pain control etc.
  • The Ricky Wannberg Memorial Page This is the memorial Web site for Ricky from Western Australia who died from a PNET brain tumour in 1996. The Web site includes pictures, poems and dedications to Ricky.
  • The Unfolding Drama of a Thyroid Cancer Patient Home page of Stuart, age 52 who began treatment for papillary carcinoma of the thyroid in May 1999. The site includes personal perspectives and a diary of the treatment.
  • Thomas' Home Page home page of a young child with leukaemia
  • Tiara's Story (USA) These pages are by a close friend of Tiara a 6 year old girl from Orogon who has advanced neuroblastoma.
  • Tony Bradford's Chronic Lymphocytic Leukaemia Page
  • Trevor's Story Trevor was diagnosed with Wilms' tumour at age 4. Read his story in the Band-Aides and Blackboards Web site.
  • Tribute in loving memory of Sam Alimentato This is the memorial Web site of Sam who at 15 was diagnosed with stage 3 Non-Hodgkin's Lymphoma. The site includes Sam's story, pictures and related links.
  • Trish Marine's Leukemia Home Page This site contains the story of Trish Marine who was diagnosed with chronic myelogenous leukemia in 1996.
  • Usry's home page - photographs and journal of Vutheary's experience with bone cancer (USA) Usry is an artist and has dedicated much of her web site to her friend Vutheary who is aged 18 and has bone cancer. Each page contains a photograph and text journaling aspects of Vutheary's treatment with chemotherapy.
  • Verity's Rb Page (UK) Verity was diagnosed with unilateral retinoblastoma at the age of 13 months and was treated at St Barts Hospital where she had her left eye enucleated in May 2000. The Web site, created by her father, includes pictures of Verity after the operation.
  • Visualisations from Planet Blortland by Diana Hinnrichs -a patient with Hodgkin's Disease. This is her story: coping with chemotherapy etc.
  • Welcome to Terri's Place (Australia) Terri was just 2yrs old she was diagnosed with a rare spinal cord tumour in August 1993. These pages tell of her brave fight against cancer.
  • Widen the Web (USA) a site by a group of families who have had kids with cancer. Includes Kid's pages, Parent's pages, Snap Shots, Links etc. Hosted by The Health Communications Research Laboratory, University of North Carolina.
  • Writings of Dawn Bortnik, a.k.a. Cyberhugs2 A Breast Cancer Survivor
See also Disease Oriented List of Resources
See also Patient's Guides

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This page last updated: Tue 29 Apr 2003 Home