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Welcome to "Guide to Internet Resources for Cancer". This site contains over 100 pages of links to cancer related information organised by disease, country, treatments, and other topics.
This page is intended to provide a starting point for patients, family, and the general public. You may find it convenient to bookmark this page now so that you can return directly to this page at a later date. There are other starting points for Health Professionals and Researchers.
If you are a new to this site please take a moment to read the Introduction and the Disclaimer. Experienced users may want to proceed to the Public Menu.
There is a vast amount of cancer related information on the Internet. This guide aims to make it easier to find specific information by providing a catalogue of web sites / pages sorted by disease type, country, treatments, and other relevant
topics. Remember that health care systems, treatment protocols
and clinical trails may vary from country to country.
| Your physician: if you are a patient always remember to discuss your health concerns and information requirements with your physician. Your physician should be able to provide you with the information which is most relevant to you.
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| Pros and cons: the Internet may provide you with a useful source to supplement your information, but may also be a potential source of confusion and frustration; see Steve Dunn's Pros and cons of
researching your cancer.
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| Information: please read the page about the Quality of Cancer Information on the Internet
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| Using this guide: after each section of this guide there is a Navigation Bar; click on one of the 7 buttons to help you move around this site; (see below)
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| Button | takes you to
| | Top | Top of the current page.
| | Patients | Patient's, Family, and Public Main Menu
| | Professionals | Health Professionals Main Menu
| | Researchers | Researcher's Main Menu
| | Disclaimer | Disclaimer
| | Index | Alphabetical index of disease and topics
| | Feedback | Feedback / Suggest a Site Form
| | ? | How to navigate
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| Links to external sites: If you want to return to this guide after visiting another site use your browsers [Back] button or [Go / History] menu. Alternatively it is possible to open links in a new window by clicking on the link with your right
mouse button and choosing "New window with this link". When you have finished looking at the link, simply close the new window using the menu (File - Close), and the original list will still available, without having to reload it.
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| Hint: for those in Europe links to the USA will be fastest in the morning before the States wake up!
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 About this Guide
- Understanding Quality of Information Issues
- More about Cancer Information on the InterNet
- Some InterNet Jargon Explained
- Your Feedback
DISCLAIMER: this guide has been written for educational purposes only, it can not be used for diagnosing or treating a health problem or a disease. If you have or suspect you may have a health problem, you should
consult your doctor. No responsibility can be accepted for information on any linked page, please read the provider's own disclaimer where appropriate. Inclusion in this guide in no way implies endorsement for particular organisations or linked material.
Patient's / Public Menu (click on an icon)
See also: alphabetical index
- Chemotherapy
- Radiotherapy
- Surgery
- Blood and Bone Marrow Transplants
- Supportive care
See also: Clinical Trials
For disease types in more detail see the alphabetical index.
Please note that there is a separate menu for children's cancer.
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Bone Cancers (Ewing's Sarcoma, Osteosarcoma, Chondrosarcoma, Orthopaedics Links, Other Bone Tumours)
Brain and CNS Tumours (Organisations, Childhood Brain Tumours, Adult / General Resources, Centres / Units, Acoustic Neuroma, Spinal Cord Tumours, Brain Tumour Ring of Hope)
Breast Cancer (Organisations, Articles / Information, Screening, Self Examination, BMT in Breast Cancer, Genetic Markers in Breast Cancer, Personal Experiences, Male Breast Cancer, Ductal Carcinoma in situ)
ColoRectal Cancers (Screening and prevention, Genetic information, Anal cancer)
Endocrine Cancers (Adrenocortical Carcinoma, Pancreatic Cancer, Pituitary Cancer, Thyroid Cancer, Parathyroid Ca., Thymus Ca., Multiple Endocrine Neoplasia, Other Endocrine ca.)
Gastrointestinal Cancers (Stomach (Gastric) Cancer, Esophageal Cancer, Small Intestine Cancer, Gall Bladder Cancer, Liver Cancer, Extra-Hepatic Bile Duct Ca., Gastrointestinal Carcinoid Tumour)
Genitourinary Cancers (Testicular Cancer, Penile Ca., Prostate Cancer)
Gynaecological Cancers (Cervical Ca., Ovarian Ca., Vaginal Ca., Uterus / Endometrium Ca., Vulva Ca., Gestational Trophoblastic Ca., Fallopian Tube ca., Uterine sarcoma)
Head and Neck Cancer (Oral cavity, Lip, Salivary gland Ca., Larynx, hypopharynx, oropharynx Ca., Nasal, Paranasal, Nasopharynx Ca.)
Leukaemia (Dedicated sites / Organisations, Blood / Haematology, Childhood Leukaemia, Acute Lymphocytic Leukaemia, Acute Myeloid Leukaemia, Chronic Lymphocytic Leukaemia, Chronic Myeloid Leukaemia, Hairy Cell Leukaemia, BMT for Leukaemia, Patient's Home Pages, Acute Promyelocytic Leukemia, Plasma Cell Leukaemia)
Multiple Myeloma
Oth. Haematological Disorders (Myelodysplastic Syndromes, Myeloproliferative Disorders, Aplastic Anaemia, Fanconi Anaemia, Waldenstrom's Macroglobulinemia, Other)
Lung Cancer (Small Cell Lung Cancer (SCLC), Non-Small Cell Lung Cancer (NSCLC), Organisations, Causes / Prevention)
Lymphoma (Hodgkin's Disease, Non-Hodgkin's Lymphoma, Aids Related Lymphoma)
Eye Cancer (Retinoblastoma, IntraOcular Melanoma, Ophthalmic Oncology /General Eye)
Skin Cancer (Melanoma, Non-Melanoma Skin Cancer, Merkel Cell Cancer, Prevention of Skin Cancer, )
Soft Tissue Sarcoma (Childhood Soft Tissue Sarcoma, Adult Soft Tissue Sarcoma, Kaposi's Sarcoma)
Urinary System Cancer (Kidney Ca. / Wilm's Tumour, Bladder Ca., Urethral Ca., Transitional Cell Cancer, )
Other Types / Related disorders (Histiocytosis, Mesothelioma, Metastatic Cancer, Carcinoid Tumours, Neurofibromatosis, Germ Cell Tumours, Desmoplasic Small Round Cell Tumour, Malignant Rhabdoid Tumour -Non Renal, Cancer of Unknown Primary Site, Desmoid Tumour, Ataxia-Telangiectasia, Nijmegen Breakage Syndrome, Rothmund-Thomson Syndrome, Li-fraumeni Syndrome, von Hipple-Lindau Disease, Beckwith-Wiedemann syndrome, Down's Syndrome, Denys-Drash Syndrome, WAGR Syndrome, CIN cervical intraepithelial neoplas)
- List of International Cancer Help Lines (CancerNet) - list of organisations and telephone numbers sorted by country.
- The James Line (USA) This is a 24-hour toll-free call center of the Comprehensive Cancer Center-Arthur G. James Cancer Hospital and Richard J. Solove Research Institute at The Ohio State University. Confidential helpline: 614/800-293-5066
- USA: Cancer Information Service A toll-free public service of the NCI; tel. 1-800-4-CANCER (1-800-422-6237), with trained operators in centers around the USA and Puerto Rico. English and Spanish language.
- What You Need to Know About Cancer- Patient's booklet (National Cancer Institute, USA) This site contains information about the disease, diagnosis, staging, and treatment options.
- Cancer Advice.co.uk Cancer Advice is managed by Dr Nick Plowman, a London based oncologist , in partnership with Acumen Solutions Ltd.
- Cancer and You - A Cancer Guide for people with cancer and those who care (BBC, UK) an online guide adapted from a booklet by Simon Crompton, it has sections including: what is cancer, the cancer "journey", you and your doctors, treatment, etc. There also new disease specific sections as part of a BBC cancer campaign.
- Cancer BACUP (UK) A UK cancer charity providing information and support for cancer patients. The site offers detailed cancer information for many types of cancer and a wide range of related topics written by oncologists specifically for cancer patients.
- CancerGuide A site by cancer survivor Steve Dunn. Includes pros and cons of researching your cancer.
- CancerHelp UK An educational Web site of Cancer Research UK. It includes information by cancer type and answers to frequently asked questions.
- CancerSource.com (USA) A site produced by Jones and Bartlett Publishers and partners. It was founded in 1999 and aims to offer a comprehensive personalized source of cancer information. Information is provided at different levels of complexity some require registration.
- Coping with cancer - Menu (OncoLink)
- Cycle of Hope (USA) By the Lance Armstrong Foundation and the Bristol-Myers Squibb company. The site includes information about cancer risks, living with cancer, tips for caregivers, Lance Armstrong's story, links, Cycle of Hope materials etc.
- Families and Patients-- The Experience of Cancer : Menu (OncoLink)
- Mayo Health O@sis (Mayo Clinic, USA) This site includes information on a wide range of medical conditions. "Cancer Resource Center" has information about finding support groups, reference articles, "Ask the Mayo Physician",quizzes, and links to other sites
- National Cancer Institute (NCI) (USA)
- OncoLink An extensive site by the University of Pennsylvania providing cancer specific information. OncoLink was one of the first cancer sites on the Internet.
- R.A. Bloch Cancer Foundation The foundation was created by a survivor of lung cancer with an aim to help all cancer patients conquer their disease. The Web site includes information about programmes, second opinions, information for patients and supporters.
- Reporting on Cancer: A Guide for Journalists This book published by, Ohio State University Press, is now available on-line in PDF format at no cost to the user. It was originally published in 1994 to help the news media improve their reporting on cancer topics. Download sections or the entire book.
- STOMACH-ONC - Stomach Tumors Electronic Support Group Email discussion list
- Taking Time - Support for People With Cancer and the People Who Care About Them (National Cancer Institute) An on-line guide to sharing emotions - sharing the diagnosis, feelings, coping within the family, when you need assistance, self images, the world outside, living each day, the years after.
- TeleScan Telematics Services in Cancer. At 06/99 the site had not been updated since 1997.
See also National and International Cancer Organisations
See also Disease Oriented List of Resources
See also Books about Cancer
- Bone Marrow Transplantation and Cancer Treatment An online booklet by Stephen Mahlstedt. Lots of graphics
- Cancer FAQ Includes a list of cancer sites.
- Cancer Info For Patients by Michele, a Radiation Therapist including information for patients undergoing Chemotherapy and Radiation Therapy.
- Cancer Links by Ron Marriage - a large index of WWW cancer sites
- Cancer Poetry Project (USA) an ongoing collaborative project designed for people who have cancer, or know someone with cancer, to submit their poetry for possible publication.
- CancerDirectory.Com $ A commercial directory designed to help find products and services to accommodate special needs resulting from cancer or related medical treatment. Links to suppliers of books, vidios, wigs andcommunity services.
- CancerHelp - Cancer Resources on the Internet Provided As A Public Service By The Robert W. Neill Companies
- CareCounsel--Access to Cancer Care Quality Review and Health Advocacy (USA) A commercial company that provide review reports assessing the completeness and overall quality of the diagnosis and/or treatment recommendations contained in a patient's medical records. It provides health and managed care advocacy.
- Child Cancer Co Provide free home pages for children with cancer.
- Dr. Koop's Community - Cancer Center This interactive site contains information on specific cancers which are integrated with a detailed medical encyclopaedia, with images and reference info. There are also integrated Reuters news items, chat and message board facilities.
- Granny Barb's Story - Chronic Lymphocytic Leukemia (Leukemia Links)
- Inspirational Patient Stories (CancerGuide)
- Interpreting Laboratory Test Results (CancerNet) Fact Sheet. A brief general discusiion: "Patients are encouraged to discuss questions or concerns about laboratory test results with the doctor"
- List of Cancer Resources by SANTEL
- National organizations that offer services to people with cancer and their families (USA, CancerNet)
- Pros and cons to Researching Your Cancer (Cancer Guide)
- Questions To Ask Your Doctor Before You Have Surgery (Agency for Health Care Policy and Research, USA) a consumer oriented guide
- QuickLink - Guide to Cancer Resources for Patients by Judith Gourdji and Susan Hinton, University of Michigan
- Susanne's Experience with ABMT for Breast Cancer by Peter Holm. This site provides a personal account of ABMT for breast cancer patient.
- Wessex Cancer Trust List of information leaflets (UK)
- What do I tell the children? - A guide for a parent with cancer (BACUP, UK) An on-line booklet
- What is Cancer ? Cancer Overview (Memorial Sloan-Kettering Cancer Center)
See also Other Patient Oriented Pages
See also National and International Cancer Organisations
See also Disease Oriented List of Resources
- ACP's Home Care Guide to Advanced Cancer (USA) An online book provided by the American College of Physicians. The site provides advice for family, friends, and hospice workers who are caring for people with advanced cancer at home, with a strong emphasis on quality of life issues.
- Caregiver Network (Canada)
- CAREGIVERS - Email list (ACOR)
- Coping at home: caring for someone with advanced cancer (BACUP, UK) An on-line booklet
- Friendly 4 Seniors (USA) this site aims to help seniors and caregivers locate services, information and resources. The site includes a search tool and section on health and medical issues.
- Lost for words - how to talk to someone with cancer (BACUP, UK) An on-line booklet
- National Family Caregivers Association (USA) The organisation exists to address the common needs of all family caregivers.
- Taking Time - Support for People With Cancer and the People Who Care About Them (National Cancer Institute) An on-line guide to sharing emotions - sharing the diagnosis, feelings, coping within the family, when you need assistance, self images, the world outside, living each day, the years after.
- TC-SUPPORTERS - Testicular Cancer Supporters Discussion Group (ACOR) Email list
- Tips for Caregivers (Cycle of Hope, USA) includes tips and links for those caring for cancer patients. Part of the site produced by the Lance Armstrong Foundation and the Bristol-Myers Squibb company.
- Young People With Cancer - A Handbook for Parents (National Cancer Institute, USA) This online guide contains detailed chapters about disease types, treatments, tips for clinic visits and medical procedures, coping with cancer, and a glossary.
 This section is still under development. This guide does not endorse any particular books, or suppliers - books with associated web pages are included here; some provide the full text on-line, others give exerts from the books, some web
pages are little more than adverts for the paper books. Of course there are many other good books on cancer that do not have a related web page, and are therefore not listed here. Your health care team may be able to recommend one that is most relevant to
you. A good place to start is Oncolink which provides reviews of selected books on cancer (see below).
- Beyond the Road's End A book by the wife of a cancer patient: telling the story of her husband's 5 month battle with a brain tumour, including treatments, support, links, death and dying, and other issues. The book can be viewed online or downloaded free (PDF)
- Book Review: Against the Odds: The True Story of Michele, A Cancer Survivor (OncoLink) The story of Michele who developed Wilms' tumor at age 3. This book was written by Michele and her parents - reviewed in OncoLink
- Non-Chew CookBook (by J. Randy Wilson) a book for people suffering from chewing, swallowing and dry mouth disorders. This site contains details about the book, sample recipes, ordering information, and links to related information.
See also Disease Oriented List of Resources
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