Rare Cancers and Related Disorders
There are well over a hundred different kinds of cancer, these include very rare types not covered in this site. In addition there are a variety of "associated disorders", these may include benign diseases that are often treated by oncologists, and "predisposition syndromes" - benign diseases that may result in an increased risk of subsequently developing cancer.
Information Sources for Rare Diseases
Cancer of Unknown Primary Eye Cancers Ataxia-Telangiectasia Fanconi Anemia Germ Cell Tumors Histiocytosis Li-Fraumeni Syndrome Neurofibromatosis Nijmegen Breakage Syndrome Pheochromocytoma and Paraganglioma Rothmund Thomson SyndromeInformation Sources for Rare Diseases (4 links)
National Organization for Rare Disorders
NORD is a non-profit federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. Founded in 1983.
OMIM - Online Mendelian Inheritance in Man
A comprehensive, authoritative compendium of human genes and genetic phenotypes that is freely available and updated daily.
A reference portal for information on rare diseases and orphan drugs, for all audiences. Orphanet is a consortium of around 40 countries, coordinated by the French INSERM team.
ACOR
