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Eye Cancer (45 links) Retinoblastoma IntraOcular Melanoma Ophthalmic Oncology /General Eye Retinoblastoma (27 links) Retinoblastoma is a rare tumour of the eye which develops in the cells of the retina, most patients are under 5 years old. Sometimes only one eye is affected (unilateral-retinoblastoma ), but in about two fifths of patients both eyes have the disease (bilateral-retinoblastoma ). Some cases are known to be hereditary. Patient's information for Retinoblastoma (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts. A Parent's Guide to Understanding Retinoblastoma A site by David H. Abramson, MD, and Christopher M. Frank (Ophthalmic Oncology Center, NY, USA) The guide includes several chapters covering various aspects including diagnosis, treatment and genetics. Christian Hernandez Appeal page for young boy from Honduras, diagnosed with retinoblastoma, age 3. Die Retinoblastom Seite - The Retinoblastoma Page (Germany) A German language site created by the parents of Christopher who was diagnosed with retinoblastoma in 1989 at age 1. It includes detailed information about retinoblastoma by a medical specialist and an Email list about blindness. Division of Ophthalmology - Childrens Hospital Los Angeles (USA) The center includes physicians who specialise in treating retinoblastoma. The web pages include a summary of ophthalmology programs and services including experimental therapeutics. General information for retinoblastoma (St Jude's Children's Research Hospital) Help Jesse Jesse has bi-lateral Retinoblastoma that spread to his spinal fluid and was treated with a bone-marrow transplant using his own cord blood. The Web site includes updates on Jesse, pictures, links to medical and other information about retinoblastoma. Joey Bergsma Retinoblastoma Awareness Page This site has been lovingly crafted by the Grandfather of Joey, who died from metastatic retinoblastoma, age 3. It aims to raise awareness of retinoblastoma and advocates infant eye screening to detect retinoblastoma and other eye problems. Mike's "Life with Retinoblastoma" By a parent with a young child who has retinoblastoma. Information, pictures and links. Naoko's Page (Japan) These pages have been created by Naoko's mother. English and Japanese language with their experiences of diagnosis and treatment. National Retinoblastoma Research and Support Foundation (USA) A support group established by parents and friends of children treated at Bascom Palmer Eye Institute. The NRRSF aims to establish a national network to provide support to parents with children affected by retinoblastoma. Pediatric Oncology Resource Center: Retinoblastoma (USA) This page contains information and links on various aspects of retinoblastoma. It is part of the Pediatric Oncology Resource Center, a site produced by parents of children with cancer, hosted by Association of Cancer Online Resources. R-BLASTOMA - Email list (ACOR) Retinoblastoma Information and Support Retinoblastoma (NRRSF) Information for parents by Peter Kaiser, MD, Ingrid Scott, MD, Joan O'Brien, MD and Timothy G. Murray, MD Retinoblastoma (Family InterNet. Com) A description of the disease. Retinoblastoma (Family Village, USA) This site includes the addresses of national retinoblastoma organisations. Retinoblastoma (UK) a factsheet produced by the United Kingdom Children's Cancer Study Group and CancerBacup linked to the UKCCSG booklet "A Parent's Guide to Children's Cancers". Retinoblastoma and the RB1 Gene (National Center for Biotechnology Information) An overview of retinoblastoma and the RB1 gene with links to other gene databases. Retinoblastoma Email List A discussion group for people affected by Retinoblastoma. It is run by the Retinoblastoma Society (UK) to provide a forum to ask questions, seek advice and get opinions from other affected people and their families. Retinoblastoma Society, The (UK) A national organisation providing support and information for people with retinoblastoma and their families. The Society has a network of regional co-ordinators and produces a newsletter for families affected by retinoblastoma. Sarah's Retinoblastoma HomePage (Australia) Sarah was diagnosed with retinoblastoma at age 4 yrs. The site includes information and pictures of Sarah. Verity's Rb Page (UK) Verity was diagnosed with unilateral retinoblastoma at the age of 13 months and was treated at St Barts Hospital where she had her left eye enucleated in May 2000. The Web site, created by her father, includes pictures of Verity after the operation. ********** Information for Health Professionals *********** Physician's PDQ statement for Retinoblastoma (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI. Case study - Recurrent Orbital Retinoblastoma after Enucleation (Digital Journal of Ophthalmology) referenced case study with images. RB1-gene mutation database (Essen, Germany) a database of 368 RB1 mutations in retinobkastoma published in Human Mutation 1999; 14(4) 283-288. Additional unpublished mutation/polymorphism data are available in a password protected area. Retinoblastoma (USA) Part of a SEER report on cancer incidence and survival among children and adolescents; 1975-1995. PDF format. Retinoblastoma - list of support groups / Links (Genetics Education Center) See also The Retinoblastoma Page See also Childhood Cancer Resources IntraOcular Melanoma (6 links) Intraocular melanoma is a rare cancer, in which malignant cells are found in the uvea (this is the part of the eye which contains the iris and other tissues). The uvea contains melanocytes which are cells that contain colour, intraocular melanoma occurs when these cells become cancerous. Patient's information for Intraocular Melanoma (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts. Cancer Of The Eye LinkLine (UK) This is a family-run helpline for people who have lost or are about to lose an eye/eyes through cancer or other trauma. It provides a service for sufferers worldwide. Collaborative Ocular Melanoma Study (COMS) (USA) a multi-center randomized trial by the National Eye Institute, National Cancer Institutes, and National Institutes of Health. The site includes a description of ocular melanoma, details of the COMS trials, and ophthalmology information. EORTC Ophthalmic Oncology Group Ocular Melanoma Research - University of Liverpool (Experimental Ophthalmology Unit, Liverpool, UK) This page includes a summary of ocular melanoma and details of the unit with links to publications by the unit. ********** Information for Health Professionals *********** Physician's PDQ statement for Intraocular Melanoma (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI. Ophthalmic Oncology /General Eye (12 links) Eye Cancer Network This is an educational web-site about the diagnosis and treatment of ocular tumors. It includes information for both patients and health professionals. It is edited by Dr P. Finger who practices at the New York Eye Cancer Center. Hope for Parents of Blind Children A book by parents including their experiences of bringing up thier son who was born blind. Download free in PDF format. National Eye Institute - National Institutes of Health (USA) The NEI was established by Congress in 1968. The Web site has information for the public, researchers, health professionals, and educators. Scotter's Low Vision Land Information and resources by a person with low vision ********** Information for Health Professionals *********** CANCERLIT: Eye Cancers (National Cancer Institute) On-line abstracts for health professionals. Sorted by month and year for Intraocular Melanoma, and Retinoblastoma. British Journal of Ophthalmology Current Eye Research (Journal) Digital Journal of Ophthalmology (Harvard) EORTC Ophthalmic Oncology Group (European Organization for Research and Treatment of Cancer) aims to improve the care of patients with ophthalmic tumours by organising multicentre clinical and basic science research, quality control studies and scientific meetings. Meta Index of Ophthalmology Lists (Hardin Meta Directory of Internet Health Sources) Ophthalmic Pathology (WebPath, USA) Pathology Images - including some cancer related. OPHTHALMO Web - Pathology site Includes access to an online database of orbital eye lesions (English and French Language) See also Retinoblastoma See also IntraOcular Melanoma