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- Organisations
- Childhood Brain Tumours
- Adult / General Resources
- Centres / Units
- Acoustic Neuroma
- Spinal Cord Tumours
- Brain Tumour Ring of Hope
Organisations (17 links)
- American Brain Tumour Association (USA) A non-profit organisation founded in 1973 dedicated to the elimination of brain tumors through research and patient education services.
- Brain Tumor Foundation of Canada A national, not-for-profit organization, founded in 1982 to provide support to people affected by brain tumors. The Web site has both English and French language pages which provide details of the organisation, its services, events, collaborations.
- Brain Tumor Society (USA) Resources for both patients, relatives, and health professionals
- Give Hope (UK) a national brain tumour organisation aiming to provide support and promote awareness and research. The site includes a newsletter, list of events, list of UK addresses, links, and other information.
Hammer Out A Bristol based charity founded in 2002 for the relief, assistance and support of people with brain tumours together with their faimily and carers. The Web site includes news, details of support group meetings and other events.
- National Brain Tumor Foundation (USA) a non-profit organisation dedicated to raising funds for research and to providing support to patients and their families. The web site includes information about tumor types, treatments, clinical trials, FAQ, news, physician's resources etc.
- Questions and Answers: Brain Tumours From the CancerHelp Web site produced by Cancer Research UK.
- Tillison Research Center (Indiana, USA) A non-profit organisation funded by donations. The center provides customised information on brain tumors and research, support for transportation, and other services. Extensive links to other brain tumor resources.
- UK Brain Tumour Society UKBTS is a registered charity, founded in 1997 by patients, relatives and three charities to provide support, increase awareness and promote research. The Web site includes
********** Information for Health Professionals ***********
- AMEDEO Medical Literature Guide - CNS tumors
- American Academy of Neurology Resources for a wide range of neurological conditions including brain tumours
- Brain Tumor Pathology Journal of the Japanese Society of Brain Tumor Pathology.
- British Brain Tumour Association
- British Neuro-Oncology Group A professional forum to promote research in neuro-oncology in the UK. The Group organises scientific meetings and other activities to promote interaction between neurosurgery, neurology, neuropathy, radiotherapy, medical oncology and other disciplines.
- Case study: A 42 year old woman with metaplastic carcinoma of the breast: matrix producing (Department of Pathology, University of Pittsburgh)
- European Association for NeuroOncology EANO is an organisation for Neurooncologists in Europe formed in 1994. This site includes a background to the organisation, membership details, reports from scientific meetings, clinical trial details, a calendar of events, and links to related sites
- National Brain Tumor Radiosurgery Association (USA) Founded in 1997, NBTRA is a patient support and information organization for those who have had or may have stereotactic radiosurgery brain tumor treatments. The Web site has a summary of the organization and contact information.
See also  Brain and CNS Tumour Menu
See also National Cancer Organisations
Childhood Brain Tumours (73 links)
- Patient's info. for Childhood Supratentorial Primitive Neuroectodermal and Pineal Tumours (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
- Patient's information for Childhood Brain Stem Glioma (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
- Patient's information for Childhood Brain Tumours (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
- Patient's information for Childhood Cerebellar Astrocytoma (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
- Patient's information for Childhood Cerebral Astrocytoma (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
- Patient's information for Childhood Medulloblastoma (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
- Patient's information for Childhood Visual Pathway Glioma (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
- 3 Boys Legacy Inc. The Foundation is based in Western Australia and was established in 1998 to promote research into childhood brain cancer. The Web site includes details of events, sponsorship and research projects.
- A Starting Point - to Connect with Resources Related to Pediatric Neuro-oncology (University of Miami Medical School, USA) This site provides links to resources about children's brain tumours listed by category (tumor types, treatments, organisations, listservers, research, etc), medical terms etc.
- Angel Wings - A Memorial to Michael A site about Michael who was sadly lost after developing a brain tumour. The site includes Michael's story, poems by mother; Martha, and links.
- Ashley's Story: Cancer, Courage, Hope ...Victory ! Most of Ashley's brain tumour (medulloblastoma) was removed by surgery in early 1997, these pages by her father include information and pictures with a detailed diary of her treatment with chemotherapy and radiotherapy.
- Brain Tumor Research - Pediatric Oncology Branch - National Cancer Institute (USA) a brief summary of children's brain tumour research at NCI.
- Brianna's Home Page - diagnosed with a PNET Brain Tumor in 1996, age 6 diary updates, information, pictures and links
- CHILD-NEURO-PARENT E-mail discussion list (University of Wisconsin, USA) a list for parents of Children with neurological problems to share their concerns, questions, sources of information, experiences, and helpful tips regarding issues in Child Neurology (including brain tumors).
- Childhood Brain Tumours (American Brain Tumor Association)
- Childhood Brain Tumours (UK) a factsheet produced by the United Kingdom Children's Cancer Study Group and CancerBacup linked to the UKCCSG booklet "A Parent's Guide to Children's Cancers".
- Childhood Central Nervous System Tumours (Health Canada) in the booklet "This Battle Which I Must Fight"
- Children's Brain Tumor Foundation (USA) The CBTF is a non-profit organization founded by families, friends and physicians of children with brain tumors; the foundation raises funds for research. This site includes details of services and events, and articles about brain tumours
- Children's Brain Tumour Research Centre, Nottingham The Centre set up in 1991 to provide a centre of excellence for the treatment and study of tumours of the brain and spine in children. The Web site includes patient information, details of research, and a glossary.
- General information for astrocytoma (St Jude's Children's Research Hospital)
- General information for empendymoma (St Jude's Children's Research Hospital)
- General information for Germ Cell Tumours of the brain (St Jude's Children's Research Hospital)
- General information for Glioma (St Jude's Children's Research Hospital)
- General information for medulloblastoma (St Jude's Children's Research Hospital)
- Hannah's Hugs (Illinois, USA) a program to help parents of children with brain tumors, including practical support for parents during hospital stays. The site includes information about the program, services, volunteers, donations and links.
- Johns Hopkins Pediatric Neuro-oncology Team
- Katie Trust, The (UK) The Katie Trust is a registered charity, formed in 1999, in memory of Katie Neal who had medulloblastoma. It funds research into childhood brain tumours and provides emotional support to children and their families, in the North of England.
- Kelly's Page - diagnosed with medulloblastoma in 1997, age 12 yrs Pictures and treatment updates.
- Kieran's Web Page - diagnosed with astrocytoma in August 1999, age 3. (Glasgow, UK) This page has details of Kieran and his diagnosis and treatment with surgery and chemotherapy for a low grade astrocytoma. There is an update of Kieran's treatment, guest book, summary of medical information and links.
- Kyle's Story - Kyle was diagnosed with medulloblastoma in 1995 his story !
- Medulloblastoma (BACUP, UK) Factsheet
- Medulloblastoma / PNET Email Discussion List an Email discussion / support list for medulloblastoma and PNET's set up by parents in the UK.
- Neuroscience for Kids a site for students and teachers who would like to learn more about the nervous system. Includes activities and experiments to learn about the brain and spinal cord. Maintained by Eric Chudler, suported by The National Center of Research Resources.
- Paediatric Brainstem Tumours (Royal Marsden Hospital, UK) An on-line booklet.
- Pediatric (Developmental) Neurosurgery Unit (Massachusetts General Hospital / Harvard Medical school, USA)
- Pediatric Brain Tumor Patient Resource Handbook (Brain Tumour Foundation of Canada - via OncoLink)
- Pediatric Oncology Resource Center: Brain Tumors (USA) This page contains information and links on various aspects of childhood brain tumours. It is part of the Pediatric Oncology Resource Center, a site produced by parents of children with cancer, hosted by Association of Cancer Online Resources.
- Ride 4 Kids - Pediatric Brain Tumor Foundation (USA) Ride for Kids is a not-for-profit organisation which provides funds for research into childhood brain tumours by the Pediatric Brain Tumor Foundation. This site includes a Mission Statement, Event schedule, and a Newsletter.
- Rory David Deutsch Foundation (USA) Founded in memory of a 7 year old who died from a brain stem glioma the Rory David Deutsch Foundation is dedicated to raising money for medical research on brain tumors in children.
- Stories and Faces: Brain Cancer (Pediatric Oncology Resource Center) List of home pages of children affected by brain tumors.
- The Ricky Wannberg Memorial Page This is the memorial Web site for Ricky from Western Australia who died from a PNET brain tumour in 1996. The Web site includes pictures, poems and dedications to Ricky.
- Tillison Research Center - Paediatric Section (Indiana, USA) A brain tumor information and support center. With programs for the patient as well as there families.
********** Information for Health Professionals ***********
- Physician's PDQ info: Childhood Supratentorial Primitive Neuroectodermal and Pineal Tumors (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI.
- Physician's PDQ statement for Childhood Brain Tumours (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI.
- Physician's PDQ statement for Childhood Brainstem Glioma (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI.
- Physician's PDQ statement for Childhood Cerebral Astrocytoma (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI.
- Physician's PDQ statement for Childhood Crebellar Atrocytoma (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI.
- Physician's PDQ statement for Childhood Medulloblastoma (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI.
- Physician's PDQ statement for Childhood Visual Pathway Brain Cancer (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI.
- Brain Stem Gliomas in Childhood (Childhood Brain Tumor Foundation) by Dana R. Foer, PA-C; and Paul Graham Fisher, MD, MHS
- Case study: 16-year-old male with pilocytic astrocytoma (Department of Pathology, University of Pittsburgh)
- Case study: 4 year old girl with subependymal giant cell astrocytoma (Department of Pathology, University of Pittsburgh)
- Case study: A 4 year old male with Embryonal Cell Carcinoma of the Pineal Gland (University of Iowa, Virtual Hospital, Radiology Resident Case of the Week, March 1996) CT and MRI images, case overview and differential diagnosis
- Case study: A four-year old girl with ring chromosome 22 and brain tumor (Department of Pathology, University of Pittsburgh)
- Case study: A nine-year old girl with anaplastic ependymoma (Department of Pathology, University of Pittsburgh)
- Case study: A twenty two month old girl with pilocytic astrocytoma (Department of Pathology, University of Pittsburgh)
- Case study: Fetus with congenital cerebral primitive neuroectodermal tumor (PNET) (Department of Pathology, University of Pittsburgh)
- Child Neurology Society (USA)
- Clinical Update (Childhood Brain Tumor Foundation) by Philip Cogen
- CNS and Miscellaneous Intracranial and Intraspinal Neoplasms (USA) Part of a SEER report on cancer incidence and survival among children and adolescents; 1975-1995. PDF format.
- Gene Therapy (Childhood Brain Tumor Foundation) by Roger Packer
- Low-Grade Gliomas in Childhood (Childhood Brain Tumor Foundation) by Eva Perdahl, MD, Ph.D
- Medulloblastoma (Childhood Brain Tumor Foundation) by Roger Packer
- Molecular Research in Pediatric CNS Tumors (Childhood Brain Tumor Foundation) by Philip Cogen
- Recent Advancements in Surgical Techniques (Childhood Brain Tumor Foundation) by Michael Medlock, MD
See also Brain and CNS Tumour Menu
See also Childhood Cancer Resources
See also Neurosurgery
Adult / General Resources (50 links)
- Patient's information for Adult Brain Tumours (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
- What You Need to Know About Brain Tumours- Patient's booklet (National Cancer Institute, USA) This site contains information about the disease, diagnosis, staging, and treatment options.
- A Primer of Brain Tumors (American Brain Tumor Association) A Patient's Reference Manual
- Astrocytoma (BACUP, UK) Factsheet
- Beyond the Road's End A book by the wife of a cancer patient: telling the story of her husband's 5 month battle with a brain tumour, including treatments, support, links, death and dying, and other issues. The book can be viewed online or downloaded free (PDF)
- Biopsy versus resection for malignant glioma (Cochrane Collaboration) Abstract of a systematic review.
- Brain Tumor Therapy (Massachusetts General Hospital, USA)
- Brain Tumours - overview (MedicineNet)
- Clinical Trials and Noteworthy Treatments for Brain Tumors: the Musella Foundation This site includes a searchable database of over 200 trials and treatments for brain tumors including new and experimental treatments. There is also a Brain Tumor Forum, a Journal Club, web links, newsletter, survivors stories and memorials.
- Dictionary for Brain Tumor Patients (American Brain Tumor Association)
- Emma Koenkev's home page A brain tumor patient
- Ependymoma (BACUP, UK) Factsheet
- Haemangioblastoma (BACUP, UK) Factsheet
- Hydrocephalus Association
- John's Funny Family This site is a celebratory remembrance of John Lyons who died from a grade IV glioblastoma multiforme at age 35. It includes John's journal, brain tumor links, poems of insprations and the writings of Jenny, his wife, who maintains the site.
- Living with a Brain Tumour An online information leaflet hosted on the UK Brain Tumour Society Web site.
- Massachusetts General Hospital (Neuro-Oncology Resources)
- Meningioma (BACUP, UK) Factsheet
- Mixed Glioma (BACUP, UK) Factsheet
- Oligodendroglioma (BACUP, UK) Factsheet
- Radiotherapy and brain tumours An online information leaflet hosted on the UK Brain Tumour Society Web site. It includes pictures and has details of treatments and side effects.
- Understanding Brain Tumours (BACUP, UK) An on-line booklet
- Whole Brain Atlas (Harvard University)
********** Information for Health Professionals ***********
- CancerLit: Neurologic Cancers (National Cancer Institute) On-line abstracts for health professionals. Sorted by month and year for Brain Tumors and Neuroblastoma.
- Physician's PDQ statement for Adult Brain Tumours (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI.
- Case study: 44-year-old man with primary embryonal rhabdomyosarcoma of the brain (Department of Pathology, University of Pittsburgh)
- Case study: A 22 years old female with intraventricular mass = choroid plexus carcinoma (Department of Pathology, University of Pittsburgh)
- Case study: A 30 year old male with ganglioglioma (Department of Pathology, University of Pittsburgh)
- Case study: A 41 year old female with solitary fibrous tumor of the meninges (Department of Pathology, University of Pittsburgh)
- Case study: A 61 year-old male with gliosarcoma with selective extraneural sarcoma mets. (Department of Pathology, University of Pittsburgh)
- Case study: A fourty four year old HIV positive man with CNS lymphoma (Department of Pathology, University of Pittsburgh)
- Case study: A sixty-eight year old woman with glioblastoma in temporal lobe (Department of Pathology, University of Pittsburgh)
- Case study: A thirty-one year old woman wiht dysembryoplastic neuroepithelial tumor (DNT) (Department of Pathology, University of Pittsburgh)
- Case study: An 11-year-old girl with an atypical meningioma (Department of Pathology, University of Pittsburgh)
- Case study: An 18 year old male with pilocytic astrocytoma (Department of Pathology, University of Pittsburgh)
- Case study: An 82-year-old Caucasian male recurrent pituitary adenoma (Department of Pathology, University of Pittsburgh)
- Case study: Metastatic adenocarcinoma in a 62 year old woman (CNS) (Department of Pathology, University of Pittsburgh)
- Case study: Paraganglioma in a 34 year old male (Department of Pathology, University of Pittsburgh)
- Central Nervous System Pathology (WebPath, USA) Pathology Images - including some cancer related.
- Guidance on Temozolomide in Recurrent Malignant Glioma. A detailed technology appraisal by the National Institute for Clinical Excellence (NICE). First issued in April 2001.
- Journal of Neuro-Oncology
- Meta Index of Neurology / Neuroscience Lists (Hardin Meta Directory of Internet Health Sources)
- Online-Neuropathology-Atlas (Department of Neurology, University Medical School, Debrecen, Hungary) This site includes a section on neoplasms with pathology and radiology JPEG graphics.
- Tumours of the pineal region (BACUP, UK) Factsheet
- WHO Classification of Tumors Affecting the Central Nervous System (1993) by Stephen Tatten (Harvard Medical School)
See also Brain and CNS Tumour Menu
See also Neurosurgery
See also Spinal Cord Tumours
Centres / Units (12 links)
- Division of Neuro-Oncology - University of Miami Medical School (University of Miami / Jackson Memorial Hospital, USA) includes contact info, summary of programs and brain tumors.
- Georgetown University Medical Center - Department of Neurosurgery (USA)
- Johns Hopkins Brain Tumor Radiosurgery (Johns Hopkins University, USA)
- Massachusetts General Hospital - Neurosurgical Service (Harvard Medical School, USA)
- Midwest Children's Brain Tumor Center (Lutheran General Children's Hospital, Chicago, USA)
- New York University - Department of Neurosurgery (USA) resources for patients, families, and health care professionals. Includes a patient oriented section on What is neurosurgery ?
- W.M. Keck Foundation (USA) Center for Integrative Neuroscience UCSF
********** Information for Health Professionals ***********
- Brain Tumor Biology Laboratory, Henry Ford Hospital, Detroit (USA) These pages include details of the labs research, extensive pages on the scientific background of brain tumours, lab protocols, project details, staff, publications, brain tumour and scientific links.
- Case study: A seventeen year old female with pituitary adenoma (Department of Pathology, University of Pittsburgh)
- M. D. Anderson Cancer Center - Section of Neuropathology (University of Texas, USA)
- Massachusetts General Hospital - Molecular Neuro-Oncology Laboratories (USA)
See also Brain and CNS Tumour Menu
See also Cancer Centres and Institutes
Acoustic Neuroma (7 links)
Acoustic neuroma (also sometimes called a neurinoma or schwannoma) is a benign (non-cancerous)
tissue growth that arises on the eighth cranial nerve. This nerve transmits hearing and balance information from the inner ear to the brain. Most acoustic neuromas are diagnosed between the ages of thirty and sixty.
See also Brain and CNS Tumour Menu
Spinal Cord Tumours (3 links)
See also Brain and CNS Tumour Menu
See also Primary CNS Lymphoma
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