|
Childhood Brain Tumours Menu
 About Childhood Brain Tumours
Organisations / Support Groups
Resources for Parents and the Public
Home Pages of Children and Families
Resources for Health Professionals
Search Elsewhere for Resources
Brain tumours are the most common solid tumour of childhood. Some are benign others are
malignant. There are a number of different types of brain tumour; how they are classified depends on
the histology and location within the brain.
This page contains links to information specifically related to Childhood Brain Tumours, other relevant resources are availible via the Main Menu of Children's Cancer Web.
 Childhood Brain Tumours Menu
 Site Menu
Disclaimer
Suggest a site
3 Boys Legacy Inc. The Foundation is based in Western Australia and was established in 1998 to promote research into childhood brain cancer. The Web site includes details of events, sponsorship and research projects.
American Brain Tumour Association (USA) A non-profit organisation founded in 1973 dedicated to the elimination of brain tumors through research and patient education services.
Brain Tumor Foundation of Canada A national, not-for-profit organization, founded in 1982 to provide support to people affected by brain tumors. The Web site has both English and French language pages which provide details of the organisation, its services, events, collaborations.
Children's Brain Tumor Foundation (USA) The CBTF is a non-profit organization founded by families, friends and physicians of children with brain tumors; the foundation raises funds for research. This site includes details of services and events, and articles about brain tumours
Children's Brain Tumour Research Centre, Nottingham The Centre set up in 1991 to provide a centre of excellence for the treatment and study of tumours of the brain and spine in children. The Web site includes patient information, details of research, and a glossary.
Duke Neuro-oncology Division (Duke University Medical Center, Durham, North Carolina, USA) This site includes details of the pediatric neuro-oncology program, family support groups, information, links, and 3 newsletters (Consultations, TeenZeen, and Kid'sStuff).
 Ellie Savage Memorial Trust The Trust provides a network of support and information for children with brain tumours and their families in East Anglia and raises money for research. The Web site includes information about brain tumours, local support groups, events and news.
Hannah's Hugs (Illinois, USA) a program to help parents of children with brain tumors, including practical support for parents during hospital stays. The site includes information about the program, services, volunteers, donations and links.
Katie Trust, The (UK) The Katie Trust is a registered charity, formed in 1999, in memory of Katie Neal who had medulloblastoma. It funds research into childhood brain tumours and provides emotional support to children and their families, in the North of England.
Midwest Children's Brain Tumor Center (Lutheran General Children's Hospital, Chicago, USA)
Pediatric (Developmental) Neurosurgery Unit (Massachusetts General Hospital / Harvard Medical school, USA)
Ride 4 Kids - Pediatric Brain Tumor Foundation (USA) Ride for Kids is a not-for-profit organisation which provides funds for research into childhood brain tumours by the Pediatric Brain Tumor Foundation. This site includes a Mission Statement, Event schedule, and a Newsletter.
Tillison Research Center - Paediatric Section (Indiana, USA) A brain tumor information and support center. With programs for the patient as well as there families.
-
See also National Childhood Cancer Organisations
See also Childhood Cancer Support Groups
See also National Cancer Organisations (in InterNet Resources for Cancer)
Childhood Brain Tumours Menu
Site Menu
Disclaimer
Suggest a site
Parent's info. for Childhood Supratentorial Primitive Neuroectodermal and Pineal Tumours (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
Parent's information for Childhood Brain Stem Glioma (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
Parent's information for Childhood Brain Tumours (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
Parent's information for Childhood Cerebellar Astrocytoma (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
Parent's information for Childhood Cerebral Astrocytoma (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
Parent's information for Childhood Medulloblastoma (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
Parent's information for Childhood Visual Pathway Glioma (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
A Starting Point - to Connect with Resources Related to Pediatric Neuro-oncology (University of Miami Medical School, USA) This site provides links to resources about children's brain tumours listed by category (tumor types, treatments, organisations, listservers, research, etc), medical terms etc.
American Brain Tumour Association (USA) A non-profit organisation founded in 1973 dedicated to the elimination of brain tumors through research and patient education services.
Brain Tumor Foundation of Canada A national, not-for-profit organization, founded in 1982 to provide support to people affected by brain tumors. The Web site has both English and French language pages which provide details of the organisation, its services, events, collaborations.
Brain Tumor Research - Pediatric Oncology Branch - National Cancer Institute (USA) a brief summary of children's brain tumour research at NCI.
Case study: 20 Month Old boy with Paravertebral Malignant Teratoma (Department of Pathology, University of Pittsburgh)- clinical details, radiology, biopsy slides and autopsy diagnoses.
CHILD-NEURO-PARENT E-mail discussion list (University of Wisconsin, USA) a list for parents of Children with neurological problems to share their concerns, questions, sources of information, experiences, and helpful tips regarding issues in Child Neurology (including brain tumors).
Childhood Brain Tumours (American Brain Tumor Association)
Childhood Brain Tumours (UK) a factsheet produced by the United Kingdom Children's Cancer Study Group and CancerBacup linked to the UKCCSG booklet "A Parent's Guide to Children's Cancers".
Childhood Central Nervous System Tumours (Health Canada) in the booklet "This Battle Which I Must Fight"
General information for astrocytoma (St Jude's Children's Research Hospital)
General information for empendymoma (St Jude's Children's Research Hospital)
General information for Germ Cell Tumours of the brain (St Jude's Children's Research Hospital)
General information for Glioma (St Jude's Children's Research Hospital)
General information for medulloblastoma (St Jude's Children's Research Hospital)
Johns Hopkins Pediatric Neuro-oncology Team
Medulloblastoma (BACUP, UK) Factsheet
Medulloblastoma / PNET Email Discussion List an Email discussion / support list for medulloblastoma and PNET's set up by parents in the UK.
Neuroscience for Kids a site for students and teachers who would like to learn more about the nervous system. Includes activities and experiments to learn about the brain and spinal cord. Maintained by Eric Chudler, suported by The National Center of Research Resources.
Paediatric Brainstem Tumours (Royal Marsden Hospital, UK) An on-line booklet.
Pediatric Brain Tumor Patient Resource Handbook (Brain Tumour Foundation of Canada - via OncoLink)
Pediatric Oncology Resource Center: Brain Tumors (USA) This page contains information and links on various aspects of childhood brain tumours. It is part of the Pediatric Oncology Resource Center, a site produced by parents of children with cancer, hosted by Association of Cancer Online Resources.
Rory David Deutsch Foundation (USA) Founded in memory of a 7 year old who died from a brain stem glioma the Rory David Deutsch Foundation is dedicated to raising money for medical research on brain tumors in children.
The Talking Lady Presents: Having A Brain Tumor Commercial. Information about a child friendly book for families where either parent or child has been diagnosed with a brain tumor.
-
See also General Childhood Cancer Resources for Parents
See also Childhood Brain Tumours Organisations
See also Home Pages of Children and Families (Childhood Brain Tumours)
Childhood Brain Tumours Menu
Site Menu
Disclaimer
Suggest a site
Angel Wings - A Memorial to Michael A site about Michael who was sadly lost after developing a brain tumour. The site includes Michael's story, poems by mother; Martha, and links.
Ashley's Story: Cancer, Courage, Hope ...Victory ! Most of Ashley's brain tumour (medulloblastoma) was removed by surgery in early 1997, these pages by her father include information and pictures with a detailed diary of her treatment with chemotherapy and radiotherapy.
Brianna's Home Page - diagnosed with a PNET Brain Tumor in 1996, age 6 diary updates, information, pictures and links
Gordon's Page - diagnosed with a brain tumour in 1997
Kelly's Page - diagnosed with medulloblastoma in 1997, age 12 yrs Pictures and treatment updates.
Kieran's Web Page - diagnosed with astrocytoma in August 1999, age 3. (Glasgow, UK) This page has details of Kieran and his diagnosis and treatment with surgery and chemotherapy for a low grade astrocytoma. There is an update of Kieran's treatment, guest book, summary of medical information and links.
Kyle's Story - Kyle was diagnosed with medulloblastoma in 1995 his story !
Stories and Faces: Brain Cancer (Pediatric Oncology Resource Center) List of home pages of children affected by brain tumors.
The Ricky Wannberg Memorial Page This is the memorial Web site for Ricky from Western Australia who died from a PNET brain tumour in 1996. The Web site includes pictures, poems and dedications to Ricky.
Welcome to Terri's Place (Australia) Terri was just 2yrs old she was diagnosed with a rare spinal cord tumour in August 1993. These pages tell of her brave fight against cancer.
-
See also Home Pages of Children and Families (all childhood cancers)
Physician's PDQ info: Childhood Supratentorial Primitive Neuroectodermal and Pineal Tumors (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI.
Physician's PDQ statement for Childhood Brain Tumours (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI.
Physician's PDQ statement for Childhood Brainstem Glioma (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI.
Physician's PDQ statement for Childhood Cerebral Astrocytoma (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI.
Physician's PDQ statement for Childhood Crebellar Atrocytoma (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI.
Physician's PDQ statement for Childhood Medulloblastoma (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI.
Physician's PDQ statement for Childhood Visual Pathway Brain Cancer (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI.
American Brain Tumour Association (USA) A non-profit organisation founded in 1973 dedicated to the elimination of brain tumors through research and patient education services.
Brain Stem Gliomas in Childhood (Childhood Brain Tumor Foundation) by Dana R. Foer, PA-C; and Paul Graham Fisher, MD, MHS
Brain Tumor Foundation of Canada A national, not-for-profit organization, founded in 1982 to provide support to people affected by brain tumors. The Web site has both English and French language pages which provide details of the organisation, its services, events, collaborations.
Brain Tumor Research - Pediatric Oncology Branch - National Cancer Institute (USA) a brief summary of children's brain tumour research at NCI.
Case study: 16-year-old male with pilocytic astrocytoma (Department of Pathology, University of Pittsburgh)
Case study: 4 year old girl with subependymal giant cell astrocytoma (Department of Pathology, University of Pittsburgh)
Case study: A 4 year old male with Embryonal Cell Carcinoma of the Pineal Gland (University of Iowa, Virtual Hospital, Radiology Resident Case of the Week, March 1996) CT and MRI images, case overview and differential diagnosis
Case study: A four-year old girl with ring chromosome 22 and brain tumor (Department of Pathology, University of Pittsburgh)
Case study: A nine-year old girl with anaplastic ependymoma (Department of Pathology, University of Pittsburgh)
Case study: A twenty two month old girl with pilocytic astrocytoma (Department of Pathology, University of Pittsburgh)
Case study: An 11-year-old girl with an atypical meningioma (Department of Pathology, University of Pittsburgh)
Case study: Fetus with congenital cerebral primitive neuroectodermal tumor (PNET) (Department of Pathology, University of Pittsburgh)
Child Neurology Society (USA)
Clinical Update (Childhood Brain Tumor Foundation) by Philip Cogen
CNS and Miscellaneous Intracranial and Intraspinal Neoplasms (USA) Part of a SEER report on cancer incidence and survival among children and adolescents; 1975-1995. PDF format.
Gene Therapy (Childhood Brain Tumor Foundation) by Roger Packer
Johns Hopkins Pediatric Neuro-oncology Team
Low-Grade Gliomas in Childhood (Childhood Brain Tumor Foundation) by Eva Perdahl, MD, Ph.D
Medulloblastoma (Childhood Brain Tumor Foundation) by Roger Packer
Medulloblastoma / PNET Email Discussion List an Email discussion / support list for medulloblastoma and PNET's set up by parents in the UK.
Molecular Research in Pediatric CNS Tumors (Childhood Brain Tumor Foundation) by Philip Cogen
Recent Advancements in Surgical Techniques (Childhood Brain Tumor Foundation) by Michael Medlock, MD
Rory David Deutsch Foundation (USA) Founded in memory of a 7 year old who died from a brain stem glioma the Rory David Deutsch Foundation is dedicated to raising money for medical research on brain tumors in children.
| Search for Related Abstracts for: "childhood+brain+tumor"
These resources are intended for Health Professionals and Researchers
| | Search CancerLit (University of Bonn)
| | Search Medline (National Library of Medicine, USA) for those without local access
| | Search OMIM (National Center for Biotechnology Information)
|
-
See also General Childhood Cancer Resources for Physicians
See also Journals and Bulletins (in InterNet Resources for Cancer)
Childhood Brain Tumours Menu
Site Menu
Disclaimer
Suggest a site
Remember when using search tools on the Internet:
- Results may include links to information related to adult cancers; these are often quite different to childhood cancers even though they may have identical or similar names.
- Results may include information intended for different audiences; for example information for oncologists often assumes a great deal of prior knowledge and specialist education.
- The search term may include a word that is spelt differently in American and UK English (eg. Leukemia vs. Leukaemia, tumor vs. tumour). The pre-configured searches in this guide use American spellings as there are more North American based web
resources.
- The quality of information on the InterNet is variable - users should be aware of source reliability issues
- Parent's are strongly advised to discuss their information requirements with their doctor, who knows their child's specific details.
Search Selected Cancer Sites for "childhood+brain+tumour"
Search the InterNet for "childhood+brain+tumour"
Childhood Brain Tumours Menu
Site Menu
Disclaimer
Suggest a site
|
Menu>
Cancer-Types> Brain Tumors