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Childhood Leukaemia Menu
 About Childhood Leukaemia
Organisations / Support Groups
Resources for Parents and the Public
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Leukaemia is the most common cancer of childhood. The body produces lymphocytes to protect the body from infection, in leukaemia these cells do not mature properly and become too numerous in the blood and bone marrow. Leukaemias may be acute or chronic.
The most common type is acute lymphoblastic leukaemia (ALL). There are a number of other less common acute types which may be grouped together as acute non-lymphoblastic leukaemia (ANLL), this includes acute myeloid leukaemia (AML).
This page contains links to information specifically related to Childhood Leukaemia, other relevant resources are availible via the Main Menu of Children's Cancer Web.
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Childhood Leukemia Foundation (USA) A national non-profit organization based in New Jersey. The Web site includes details of services including camp scolarships and financial assistance.
Children With Leukaemia Trust (UK) Charity formed to help relieve the financial burden of bone marrow testing and transplants in the UK.
Children's Leukemia Foundation of Michigan (USA) CLF was founded by parents in 1952 and aims to provide compassionate personalised support for both children and adults with leukemia and other blood disorders. The site includes information about services, Q&A, events, newsletter etc.
Foundation for Children with Leukaemia (UK) a charity founded in 1988 which provides resources for leukaemia treatment and research in centres throughout the UK and funds the Paul O'Gorman Centres at GOS and Bristol. The web site includes details of the charity's work, events etc.
Leukaemia Care Society (UK) A support group extablished in 1967 which provides support for children and adults with lekaemia and their families. The web site includes detailed information about the Society and its programmes, medical overview and related links.
Leukaemia Research Fund (UK) A national cancer charity funding research into leukaemia and other types of cancer. The site includes online patient information booklets, and research abstracts.
National Children's Leukemia Foundation (USA) The NCLF is a non-profit organization providing services, support, and referrals for leukemia patients and their families.The site provides details of their telephone help line, and information on various topics related to childhood leukemia.
One Voice Accross America - A Ride To Fight Childhood Cancer (USA) This site is by Bobby, a 19 year old survivor of childhood leukemia who is doing a 4,300 mile cross-country bike ride to raise money for childhood cancer. There are photographs, news articles, and details of how you can help.
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See also National Childhood Cancer Organisations
See also Childhood Cancer Support Groups
See also National Cancer Organisations (in InterNet Resources for Cancer)
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Parent's information for Childhood Acute Myeloid Leukaemia (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
Parent's information for Childhood Acute Lymphocytic Leukaemia (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
Acute Leukaemia in Children A booklet for parents. (Leukaemia Research Fund, UK)
Childhood Acute Lymphoblastic Leukaemia (UK) a factsheet produced by the United Kingdom Children's Cancer Study Group and CancerBacup linked to the UKCCSG booklet "A Parent's Guide to Children's Cancers".
Childhood Acute Myeloid Leukaemia (UK) a factsheet produced by the United Kingdom Children's Cancer Study Group and CancerBacup linked to the UKCCSG booklet "A Parent's Guide to Children's Cancers".
Childhood Leukemia Center (Patient Centered Guides .Com) Includes material from "Childhood Leukemia: A Guide for Families, Friends, and Caregivers" by Nancy Keene. Childhood leukemia FAQ. Book ordering information.
Coping with Childhood Leukaemia A booklet for parents. (Leukaemia Research Fund, UK)
Down's Syndrome And Leukaemia (Leukemia Research Fund , UK) on-line leaflet
Emotional Aspects of Childhood Leukemia - Online Booklet (Leukemia and Lymphoma Society, USA)
Event: Battersy Young Strings in Concert - 11th June 2000 (UK) a concert in tribute to of one of the orchestra members, Jamie Gregory, who sadly died from leukaemia last year. Raising money for the Leukaemia Research Fund
Factsheet On Splenectomy And Infection (Leukemia Research Fund , UK) on-line factsheet
General information for acute lymphocytic leukemia (St Jude's Children's Research Hospital)
General information for acute myeloid leukemia (St Jude's Children's Research Hospital)
I'm Having a Bone Marrow Transplant (Leukemia and Lymphoma Society, USA) a coloring book designed to help children up to 15 years of age express themselves throughout the stressful process of having a bone marrow transplant.
Leukaemia Busters (UK) This is a registered charity based at Southampton General Hospital. It was founded in 1989 to raise money for research into leukaemia and lymphoma at the The Simon Flavell Leukaemia Research Unit.
Leukaemia in Children (Leukemia Research Fund , UK) on-line booklet
Leukaemia in Children - Audio Clip (NHS Direct, UK) 7 minutes
Leukaemia Research Fund (UK) A national cancer charity funding research into leukaemia and other types of cancer. The site includes online patient information booklets, and research abstracts.
Leukemia and Me - a poem by Joan Fleitas RN (in Band-aides and Blackboards) a story-rhyme for children divided into 3 parts describing blood cells, about the leukemia "bullies", treatment and other issues. A wonderful inspiring poem.
Paediatric - Acute Lymphoblastic Leukaemia (Royal Marsden Hospital, UK) An on-line booklet.
Paediatric - Acute Myeloid Leukaemia (Royal Marsden Hospital, UK) An on-line booklet.
Paediatric - Chronic Myeloid Leukaemia (Royal Marsden Hospital, UK) An on-line booklet.
Paediatric Leukaemia (Singapore) A project by students from Crescent Girls' School in association with the National University Hospital to educate to public about Paediatric Leukaemia in Singapore. The site has several pages about various aspects of paediatric leukaemia.
Paediatric Relapsed acute Lymphoblastic leukaemia (Royal Marsden Hospital, UK) An on-line booklet.
Pediatric Oncology Resource Center: Leukemia (USA) This page contains information and links on various aspects of childhood leukemia. It is part of the Pediatric Oncology Resource Center, a site produced by parents of children with cancer, hosted by Association of Cancer Online Resources.
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See also General Childhood Cancer Resources for Parents
See also Childhood Leukaemia Organisations
See also Home Pages of Children and Families (Childhood Leukaemia)
See also General / Adult Leukaemia Resources (in InterNet Resources for Cancer)
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Austin's Place home page of Austin, age 15, who has leukemia
Daniel's FISH Fund / Philadelphia Positive Leukaemia (UK) Daniel, age 2 was diagnosed with Philadelphia positive leukaemia in 1994. This web site includes summaries of the disease, FISH, research, and photographs of Daniel. The fund supports research at the Royal Free Hospital, London
Doris Gowen's Leukemia Home Page Features 12 year-old Doris' fight with acute lymphocytic leukemia, her chemotherapy, relapse, BMT, early post-transplant relapse and participation in a clinical trial using immunotoxin B43-PAP. She died May 22, 1999.
FaithsFight.com Faith was diagnosed with acute lymphocytic leukemia (ALL), at age 3 yrs in April 2002. This Web site, by her parents, includes Faith's story, updates, gallery, a guest-book and other features.
In Memory of Jamie Gregory - A Parent's Story (UK) Jamie was lost to leukaemia in 1999. This site by his parents includes details of their personal experiences, information sources, summary of ALL, pictures etc. There is a link to Jamie's own web pages.
In Memory of Yossi Chaim In memory of Yossi, who was diagnosed with leukaemia (ALL) in 1997. This site has been set up by his parents and includes detailed updates of Yossi's experience of chemotherapy and bone marrow transplant.
James vs Leukemia James was diagnosed with Leukemia, age 17 in April 1997. These pages are his mother's personal account of how leukemia has affected their lives. The site includes a log of James' treatment, summary of leukemia, "feeding the chemo kids" and other info
Josh Eaton's Home Page A 7 year old who has had a bone marrow transplant for Philadelphia chromosome positive acute lymphoblastic leukemia. Sadly Josh passed away but the web pages remainon-line to provide information about BMT for others.
Jule's Home Page - A Page for CancerKids by a CancerKid Pages of an ALL patient from Australia
Stephanie's Fight Against Leukemia (Ontario, Canada) This is the home page of Stephanie, who was diagnosed with Acute Lymphoblastic Leukemia at age 4. The site by Stephanies's Dad includes a daily diary, pictures, and personal accounts of chemotherapy.
Steven's Page Steven, age 5 was diagnosed with acute lymphocytic leukemia in January 1999. This page has been set up by his Grandfather, it includes a message board with Steven's treatment updates and leukemia related links.
Stories and Faces: Leukemia (Pediatric Oncology Resource Center) List of home pages of children affected by leukemia
Taber's Journey This is the Web site of Taber from British Columbia, Canada. The site includes a journal of Taber's experiences and his treatment for leukemia, photo gallery, and links.
Thomas' Home Page home page of a young child with leukaemia
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See also Home Pages of Children and Families (all childhood cancers)
See also General / Adult Leukaemia Resources (in InterNet Resources for Cancer)
Physician's PDQ statement for Childhood Acute Lymphocytic Leukaemia (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI.
Physician's PDQ statement for Childhood Acute Myeloid Leukaemia (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI.
Childhood Leukemia (USA) Part of a SEER report on cancer incidence and survival among children and adolescents; 1975-1995. PDF format.
Leukaemia Research Fund (UK) A national cancer charity funding research into leukaemia and other types of cancer. The site includes online patient information booklets, and research abstracts.
Leukaemia Research Fund - Molecular Pharmacology Programme (Newcastle University, UK) research in the lab aims to improve targeting of cytotoxic drugs in the treatment of leukaemia. The web pages contain an overview of the research, list of personnel, contact information etc.
Negative Mood in Childhood Leukemia Survivors Abstract: Comparison of Psychologic Outcome in Adult Survivors of Childhood Acute Lymphoblastic Leukemia..A CCG/NIH study. J Clin Oncol 15:547-556, 1997.
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These resources are intended for Health Professionals and Researchers
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See also General Childhood Cancer Resources for Physicians
See also Journals and Bulletins (in InterNet Resources for Cancer)
See also General / Adult Leukaemia Resources (in InterNet Resources for Cancer)
See also Haematology (in InterNet Resources for Cancer)
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Remember when using search tools on the Internet:
- Results may include links to information related to adult cancers; these are often quite different to childhood cancers even though they may have identical or similar names.
- Results may include information intended for different audiences; for example information for oncologists often assumes a great deal of prior knowledge and specialist education.
- The search term may include a word that is spelt differently in American and UK English (eg. Leukemia vs. Leukaemia, tumor vs. tumour). The pre-configured searches in this guide use American spellings as there are more North American based web
resources.
- The quality of information on the InterNet is variable - users should be aware of source reliability issues
- Parent's are strongly advised to discuss their information requirements with their doctor, who knows their child's specific details.
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