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Ewing's sarcoma / Peripheral Primitive Neuroectodermal Tumours (PNET) of bone is a type of cancer usually found in children and young adults. The peak incidence is between ages 10 and 20, it is less common in children under 5 or in adults over 30. Ewing's
s can occur in any bone in the body; the most common sites are the pelvis, thigh, lower leg, upper arm, and rib. The tumour is composed of small round blue cells. Ewing's sarcoma can also arise in soft tissue (extra-skeletal); see Soft Tissue Sarcoma in
this guide.
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Ewing's Sarcoma Resources
Ewing's Sarcoma FAQs
Molecular Biology of Ewing's Sarcoma
Bone Tumour Resources
Children's Cancer Resources
- Patient's information for Ewing's Sarcoma (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
- About James Ewing (1866 - 1943) The man after whom Ewing's Sarcoma is named
- Childrens Hospital Los Angeles - Ewing's sarcoma / pPNET genetics study A confidential study investigating the role of genes in Ewing's sarcoma looking for participation by patients and their parents and siblings from around the world. DNA is extracted from mouthwash or blood samples from volunteers.
- E-SARCOMA Email List - The Ewing Sarcoma Online Support Group (ACOR) includes details of how to join the list - E-SARCOMA@listserv.acor.org
- E-SARCOMA-UK An Email list open to anyone interested in Ewing's sarcoma. It is primarily aimed at UK based families and health professionals, both others are very welcome. The list was set up by parents who lost their son to Ewing's sarcoma.
- European Intergroup Ewing's Sarcoma Study Historical details of the EICESS '92 trial, now closed to entry. EICESS is a collaboration of groups and treatment centres in Germany, UK, Netherlands, and elsewhere.
- Ewing's Sarcoma (Health Answers, USA)
- Ewing's Sarcoma (UK) a factsheet produced by the United Kingdom Children's Cancer Study Group and CancerBacup linked to the UKCCSG booklet "A Parent's Guide to Children's Cancers".
- Ewing's Sarcoma FAQ (Bone Cancer FAQ) Answers to some of the frequently asked questions about Ewing's Sarcoma / PNET. It is produced by an international panel of bone cancer specialists.
- General information for Ewing's sarcoma (St Jude's Children's Research Hospital)
- Maddy's Story (in Band-aides and Blackboards) the story of Maddy who was diagnosed with Ewing's sarcoma of the femur with lung metastases at age 13.
- Paula's story Paula was diagnosed with Ewing's sarcoma of the spine in 1981, treated at the M.D. Anderson Cancer Center, USA.
- Robert and Karen's Home and Links Page Thiese pages include information about Robert amd Karen's son Matthew, who was diagnosed with Ewing's sarcoma in 1996. There are pictures of Matthew along with his poems, plus derails of treatments recieved and links to related sites.
********** Information for Health Professionals ***********
- Physician's PDQ statement for Ewing's Sarcoma (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI.
- Physician's PDQ statement for Peripheral Primitive Neuroectodermal Tumor (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI.
- Case study: A nineteen year old man with Ewing's Sarcoma (Department of Pathology, University of Pittsburgh)
- Ewing's sarcoma (Radiology Museum, Central Middlesex Hospital, UK) text and radiology images
- Physician's statement for Ewing's Sarcoma (START, European School of Oncology) Referenced statement including sections on epidemiology, pathology, diagnosis, staging, treatment and follow-up produced by an editorial board of top European oncologists.
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