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Wilms' tumour is a cancer of the kidney which is very different to adult kidney cancer. Most patients are under 5 years of age at diagnosis, though Wilms' tumour is sometimes seen in older children and occasionally in young adults. In most cases only one
kidney has disease (unilateral-Wilms' Tumour); but in some cases both kidneys are affected (bilateral-Wilms' tumour). A small minority of cases are known to be hereditary. Other less common kidney cancers in children include malignant rhabdoid tumours and
clear cell sarcoma. Treatment for these is usually similar to that for Wilms' tumour.
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Resources for Parents and the Public
Home Pages of Children and Families
Resources for Health Professionals and Researchers
See also General Childhood Cancer Resources for Parents
See also National Childhood Cancer Organisations
- Parent's information for Wilms' Tumor (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
- Book Review: Against the Odds: The True Story of Michele, A Cancer Survivor (OncoLink) The story of Michele who developed Wilms' tumor at age 3. This book was written by Michele and her parents - reviewed in OncoLink
- General information for Wilms' Tumour (St Jude's Children's Research Hospital)
- National Wilms' Tumor Study Group (USA) The NWTSG is a national collaborative group established in 1969. NWTSG runs clinical trials and other research with the aim of improving treatment for Wilms' tumor. The site includes a detailed bibliography, FAQ and patient information.
- Pediatric Oncology Resource Center: Wilms' tumour (USA) This page contains information and links on various aspects of Wilms' Tumor. It is part of the Pediatric Oncology Resource Center, a site produced by parents of children with cancer, hosted by Association of Cancer Online Resources.
- Therapieoptimierungsstudie zur Behandlung von Kindern - Nephroblastom (SIOP 93-01) (Homburg/Saar, Germany) German language - Home page of the SIOP 93-01 / GPOH Wilm's tumour study.
- Wilms' Tumor (National Organization for Rare Disorders) Symptoms, description, and resources
- Wilms' Tumor (CancerNews on the Net) An article by Max J. Coppes, MD, PhD
- Wilms' tumour (Health Canada) in the booklet "This Battle Which I Must Fight"
- Wilms' Tumour (UK) a factsheet produced by the United Kingdom Children's Cancer Study Group and CancerBacup linked to the UKCCSG booklet "A Parent's Guide to Children's Cancers".
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See also Home Pages of Children and Families
- Bren's Place - A longterm survivor of Wilms' tumour (USA) Bren was diagnosed with Wilms' tumour at age 11 months in 1956 at a time when few children survived cancer. The pages includes Bren's experience with Wilms' tumour and long-term effects of radiotherapy, related links etc.
- Jessica's Story (Parents Of Kids With Cancer) Jessica was diagnosed with Wilms' tumor and lung metastases in 1997. This page by Jessica's mother tells her story with pictures and details of treatment.
- Matthew's Page (USA) Matthew was diagnosed with Stage 3 Wilms' tumor at age one then relapsed in 1997 at age 2-1/2, possibly with renal cell carcinoma . After further treatment he went back into remission. The Web site includes detailed treatment updates.
- My Wilms' Tumor Story (Maryland, USA) Karen was diagnosed with stage 1 Wilms' Tumor in 1954 at the age of 18 months. Karen was told she was one of the fist long-term survivors of WT, this is her story including effects of RT, her active life, grandchildren, links etc.
- Stories and Faces: Wilms' Tumor (Pediatric Oncology Resource Center) List of home pages of children affected by Wilms' tumors.
- Trevor's Story Trevor was diagnosed with Wilms' tumour at age 4. Read his story in the Band-Aides and Blackboards Web site.
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See also General Childhood Cancer Resources for Physicians
See also National Childhood Cancer Organisations
- Physician's PDQ Statement for Wilms' Tumor (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI.
- Bibliography on Wilms' Tumor (National Wilms Tumor Study Group)
- Case study: Wilms' Tumor (University of Iowa, Virtual Hospital, Radiology Resident Case of the Week, March 1996) A case of a 3 year old female with an enlarging abdominal is presented, along with radiological immages.
- Childhood Renal Tumors (USA) Part of a SEER report on cancer incidence and survival among children and adolescents; 1975-1995. PDF format.
- Les dossiers classés en "Wilms' Tumor" (University of Rennes, France) Frech language. Radiological images and commentary.
- National Wilms' Tumor Study Group (USA) The NWTSG is a national collaborative group established in 1969. NWTSG runs clinical trials and other research with the aim of improving treatment for Wilms' tumor. The site includes a detailed bibliography, FAQ and patient information.
- The molecular biology of Wilms' tumour (Review) Keith W. Brown and Karim T.A. Malik (2001) The molecular biology of Wilms’ tumour. Exp. Rev. Mol. Med. 14 May 2001. An expert review with figures and 96 references.Free access.
- Therapieoptimierungsstudie zur Behandlung von Kindern - Nephroblastom (SIOP 93-01) (Homburg/Saar, Germany) German language - Home page of the SIOP 93-01 / GPOH Wilm's tumour study.
- Wilms Tumour - A Link Between Cancer and Development (MRC Human Genetics Unit, Edinburgh, UK) Information for researchers
- WT1 - Wilms tumour gene (11p13) (Human Gene Mutation Database - Institute of Medical Genetics, Cardiff,UK)
- WT1 Mutation Database (Universal Mutation Database, France)
- Medline Search: Wilms' tumor (PubMed)
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