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Ewing's Sarcoma Menu
 About Ewing's Sarcoma
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Ewing's sarcoma / Peripheral Primitive Neuroectodermal Tumours (PNET) of bone is a type of cancer usually found in children and young adults. The peak incidence is between ages 10 and 20, it is less common in children under 5 or in adults over 30. Ewing's
s can occur in any bone in the body; the most common sites are the pelvis, thigh, lower leg, upper arm, and rib. The tumour is composed of small round blue cells. Ewing's sarcoma can also arise in soft tissue (extra-skeletal); see Soft Tissue Sarcoma in
this guide.
This page contains links to information specifically related to Ewing's Sarcoma, other relevant resources are availible via the Main Menu of Children's Cancer Web.
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Parent's information for Ewing's Sarcoma (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
Questions and Answers About Bone Cancer (CancerNet)
About James Ewing (1866 - 1943) The man after whom Ewing's Sarcoma is named
Bone Cancer FAQ Answers to some of the frequently asked questions about bone cancer. It is produced by an international panel of bone cancer specialists. It includes separate Ewing's Sarcoma FAQ and Osteosarcoma FAQ.
Bone Cancer Research Fund -Indiana University School of Medicine (USA) The Fund supports osteosarcoma and related bone sarcoma research. The site includes an on-line newsletter about research in bone cancer.
BoneTumor.org (H. DeGroot MD, University of Massachusetts) an educational web site about bone tumors with sections for patients and health professionals. Includes treatment summaries and an online atlas of bone tumours with radiology and pathology images.
Center for Orthopaedic Oncology and Musculoskeletal Research (Washington Cancer Institute, USA) The Web site includes slides, references, research, publications and links.
Childrens Hospital Los Angeles - Ewing's sarcoma / pPNET genetics study A confidential study investigating the role of genes in Ewing's sarcoma looking for participation by patients and their parents and siblings from around the world. DNA is extracted from mouthwash or blood samples from volunteers.
E-SARCOMA Email List - The Ewing Sarcoma Online Support Group (ACOR) includes details of how to join the list - E-SARCOMA@listserv.acor.org
E-SARCOMA-UK An Email list open to anyone interested in Ewing's sarcoma. It is primarily aimed at UK based families and health professionals, both others are very welcome. The list was set up by parents who lost their son to Ewing's sarcoma.
European Intergroup Ewing's Sarcoma Study Historical details of the EICESS '92 trial, now closed to entry. EICESS is a collaboration of groups and treatment centres in Germany, UK, Netherlands, and elsewhere.
Ewing's Sarcoma (Health Answers, USA)
Ewing's sarcoma (National Association of Rare Disorders)
Ewing's Sarcoma (UK) a factsheet produced by the United Kingdom Children's Cancer Study Group and CancerBacup linked to the UKCCSG booklet "A Parent's Guide to Children's Cancers".
Ewing's Sarcoma FAQ (Bone Cancer FAQ) Answers to some of the frequently asked questions about Ewing's Sarcoma / PNET. It is produced by an international panel of bone cancer specialists.
General information for Ewing's sarcoma (St Jude's Children's Research Hospital)
Musculoskeletal Oncology Unit (Johns Hopkins University, USA)
Musculoskeletal Tumor Society A non-profit organization bringing together orthopaedic surgeons and other physicians to forward musculoskeletal oncology research. MSTS was founded in the early 1980's and has members accross North and South America
Paula's story Paula was diagnosed with Ewing's sarcoma of the spine in 1981, treated at the M.D. Anderson Cancer Center, USA.
Pediatric Oncology Resource Center: Bone Tumors (USA) This page contains information and links on various aspects of bone cancer. It is part of the Pediatric Oncology Resource Center, a site produced by parents of children with cancer, hosted by Association of Cancer Online Resources.
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See also General Childhood Cancer Resources for Parents
See also National Childhood Cancer Organisations
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Physician's PDQ statement for Ewing's Sarcoma (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI.
Physician's PDQ statement for Peripheral Primitive Neuroectodermal Tumor (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI.
About James Ewing (1866 - 1943) The man after whom Ewing's Sarcoma is named
Bone and Joint Pathology Images (WebPath, USA) Pathology Images - including Chondrosarcoma, Ewing's, and Osteosarcoma
Bone Cancer Research Fund -Indiana University School of Medicine (USA) The Fund supports osteosarcoma and related bone sarcoma research. The site includes an on-line newsletter about research in bone cancer.
Bone Tumour Menu (Wheeless' Textbook of Orthopaedics)
Bone Tumours - Lecture notes from Dr. Teresa Darragh (UCSF Department of Anatomic Pathology) see also files lec_72bone .. 74.bone
BoneTumor.org (H. DeGroot MD, University of Massachusetts) an educational web site about bone tumors with sections for patients and health professionals. Includes treatment summaries and an online atlas of bone tumours with radiology and pathology images.
Case study: A nineteen year old man with Ewing's Sarcoma (Department of Pathology, University of Pittsburgh)
Center for Orthopaedic Oncology and Musculoskeletal Research (Washington Cancer Institute, USA) The Web site includes slides, references, research, publications and links.
E-SARCOMA-UK An Email list open to anyone interested in Ewing's sarcoma. It is primarily aimed at UK based families and health professionals, both others are very welcome. The list was set up by parents who lost their son to Ewing's sarcoma.
European Intergroup Ewing's Sarcoma Study Historical details of the EICESS '92 trial, now closed to entry. EICESS is a collaboration of groups and treatment centres in Germany, UK, Netherlands, and elsewhere.
Ewing's sarcoma (Radiology Museum, Central Middlesex Hospital, UK) text and radiology images
Local Control of Pediatric Sarcomas of Bone (Bone Cancer Research Fund, Indiana University) Short paper by Bruce T. Rougraff, M.D., Assistant Professor of Orthopaedic Surgery and Pathology
Malignant Bone Tumors (USA) Part of a SEER report on cancer incidence and survival among children and adolescents; 1975-1995. PDF format.
Meta Index of Orthopedics Lists (Hardin Meta Directory of Internet Health Sources)
Musculoskeletal Oncology Unit (Johns Hopkins University, USA)
Musculoskeletal Tumor Society A non-profit organization bringing together orthopaedic surgeons and other physicians to forward musculoskeletal oncology research. MSTS was founded in the early 1980's and has members accross North and South America
Wheeless' Textbook of Orthopaedics This online textbook includes entries for bone cancers.
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See also Journals and Bulletins (in InterNet Resources for Cancer)
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Remember when using search tools on the Internet:
- Results may include links to information related to adult cancers; these are often quite different to childhood cancers even though they may have identical or similar names.
- Results may include information intended for different audiences; for example information for oncologists often assumes a great deal of prior knowledge and specialist education.
- The search term may include a word that is spelt differently in American and UK English (eg. Leukemia vs. Leukaemia, tumor vs. tumour). The pre-configured searches in this guide use American spellings as there are more North American based web
resources.
- The quality of information on the InterNet is variable - users should be aware of source reliability issues
- Parent's are strongly advised to discuss their information requirements with their doctor, who knows their child's specific details.
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