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The Non Hodgkin's Lymphoma Page
CancerIndex Home - Guide to Internet Resources for Cancer Home> Cancer Types> Hematological> NHL

Menu: The Non Hodgkin's Lymphoma Page

Organisations
Resources for Patients and the Public
Personal Experiences
Resources for Health Professionals
Other Lymphoma Resources
Childhood NHL
Cutaneous T-Cell Lymphoma (Skin)
Primary non-Hodgkin's Lymphoma of Bone
Aids Related Lymphoma
Primary CNS Lymphoma


Organisations (7 links)

  • British National Lymphoma Investigation (UK) The BNLI was formed in 1970 to coordinate medical research into the diagnosis and treatment of lymphomas, and is involved in running clinical trials and other research.
  • Cure for Lymphoma Foundation (USA) a national research organisation with a focus on lymphomas
  • HUG Hodgkins United Group (Ireland) a support group for patients with Hodgkin's and Non-Hodgkins Lymphomas, their relatives and friends. This page is on the Irish Cancer Society web site.
  • Lymphoma Association (UK) The association provide emotional support and information to people with lymphatic cancer and to their families, carers and friends. The site ihas details of the national network of support groups, telephone helpline, online-booklets etc.
  • Lymphoma Research Foundation Canada / Fondation Canadienne sur le Lymphome (Canada) A non-profit organisation founded in 1998 with the aim of providing support to patients and funding research. The site contains information about the organisation, about lymphomas, research, services etc. English and French language support
  • Lymphoma Research Foundation of America (USA) LRFA raises money for research and provides patient support and information. It was founded in 1991 by a patient with NHL. The Web site includes details of services, information about lymphoma, research grants etc.
  • NHL - Non Hodgkins Lymphoma Support Group Email discussion list
See also National Cancer Organisations

Site Map


Resources for Patients and the Public (13 links)

See also General Lymphoma Resources
See also Cancer Treatments Menu
See also Main Patient's Menu

Site Map


Personal Experiences (7 links)

  • Kyle's fight with Cancer Kyle was diagnosed with Burkitt's Lymphoma at age 13 yrs, in 1996. This site is by his brother, Kevin, including pictures, details of Kyle's experience, treatment and remission.
  • Levi's Story (USA) Levi, a young man from Oregon, was diagnosed with Non-Hodgkin's Lymphoma in 1997. The pages include his experience with diagnosis with NHL, treatment, and life in remission.
  • NHL Cyber family The Cyber Family are a group of patients and family providing information and support for those diagnosed with NHL. There are details of mailing lists, information, FAQ, "family album", links etc.
  • Non-Hodgkins Lymphoma site (UK) Home pages of Janet who was diagnosed with NHL in 1996. The site includes information about NHL, links, and personal information.
  • Shelby Miguel's Website The Web site includes details of Shelby’s courageous fight against Burkitts lymphoma, diagnosed in 1999 when she was 4 years old. The site includes pictures of Shelby then and now, supportive words for other parents, a Guest Book and other information.
  • Stop Non-Hodgkin's Lymphoma ! This site has been produced by Trudi whose husband was diagnosed with NHL. The site includes a NHL message board, NHL links, related events, prayers for patients, a NHL Heroes page, and "what you can do to help" with links to lymphoma organisations.
  • NEW Tribute in loving memory of Sam Alimentato This is the memorial Web site of Sam who at 15 was diagnosed with stage 3 Non-Hodgkin's Lymphoma. The site includes Sam's story, pictures and related links.
Site Map


Resources for Health Professionals (19 links)

See also General Lymphoma Resources
See also Main Health Professional's Menu
See also Cancer Researcher's Menu

Site Map


Other Lymphoma Resources (8 links)

  • Información de Linfoma en Español - Spanish resource page for lymphoma information (Lymphoma Information Network) Spanish language pages
  • Lymphoma Information Network (USA) The site contains detailed information about adult and childhood lymphomas, patient support, glossary and includes a section for physicians. The site started in 1994 as is produced by Mike Barela, a Hodgkin's Lymphoma survivor.
  • Lymphomas (Leukemia and Lymphoma Society, USA) on-line booklet
  • Lymphomas (Royal Marsden Hospital, UK) An on-line patient booklet.
  • Questions and Answers: Lymphoma From the CancerHelp Web site produced by Cancer Research UK.
  • The Lymphomas (Leukaemia Research Fund, UK)
    ********** Information for Health Professionals ***********
  • Hematopathology (WebPath, USA) Pathology Images - including some cancer related.
  • Lymphoma Forum (UK) The forum is intended for health professionals. The site requires free registration and password and includes interactive case studies, "hot topics", and conference reports, a resource library, Lymphoma Bulletin, and notice board.

Site Map


Childhood NHL (16 links)

  • Patient's information for Childhood Non-Hodgkin's Lymphoma (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
  • Childhood Lymphomas (Health Canada) in the booklet "This Battle Which I Must Fight"
  • Childhood Lymphomas (CancerNews on the Net) an article by Faith H. Kung, M.D
  • Childhood NHL (Lymphoma Information Network) The pages include information about childhood Hodgkin's, diagnosis, treatment, and a kid's page. The site is produced by a lymphoma survivor.
  • Childhood Non-Hodgkin's Lymphoma (UK) a factsheet produced by the United Kingdom Children's Cancer Study Group and CancerBacup linked to the UKCCSG booklet "A Parent's Guide to Children's Cancers".
  • General information for non-Hodgkin's lymphoma (St Jude's Children's Research Hospital)
  • Kyle's fight with Cancer Kyle was diagnosed with Burkitt's Lymphoma at age 13 yrs, in 1996. This site is by his brother, Kevin, including pictures, details of Kyle's experience, treatment and remission.
  • Levi's Story (USA) Levi, a young man from Oregon, was diagnosed with Non-Hodgkin's Lymphoma in 1997. The pages include his experience with diagnosis with NHL, treatment, and life in remission.
  • Lymphoma Information Network A site established in 1994 by Mike Barela, a Hodgkin's Lymphoma survivor. The Web site includes patient orientated information on both adult and childhood lymphomas.
  • Paediatric - Non-Hodgkin's Lymphoma (Royal Marsden Hospital, UK) An on-line booklet.
  • Pediatric Oncology Resource Center: Lymphomas (USA) This page contains information and links on various aspects of childhood lymphomas. It is part of the Pediatric Oncology Resource Center, a site produced by parents of children with cancer, hosted by Association of Cancer Online Resources.
  • Shelby Miguel's Website The Web site includes details of Shelby’s courageous fight against Burkitts lymphoma, diagnosed in 1999 when she was 4 years old. The site includes pictures of Shelby then and now, supportive words for other parents, a Guest Book and other information.
  • Stories and Faces: Lymphoma (Pediatric Oncology Resource Center) List of home pages of children affected by lymphoma
  • NEW Tribute in loving memory of Sam Alimentato This is the memorial Web site of Sam who at 15 was diagnosed with stage 3 Non-Hodgkin's Lymphoma. The site includes Sam's story, pictures and related links.
    ********** Information for Health Professionals ***********
  • Physician's PDQ statement for Childhood Non-Hodgkin's Lymphoma (CancerNet) A referenced overview of the disease, cellular classification, staging, and current treatment overviews. It is reviewed each month by experts at the NCI.
  • Lymphomas and Reticuloendothelial Neoplasms (USA) Part of a SEER report on cancer incidence and survival among children and adolescents; 1975-1995. PDF format.
  • Medline Search: Childhood Non-Hodgkin's Lymphoma (PubMed)   Limit search to: [Last Year]  Limit search to: [Last 2 Years]   Limit search to: [Reviews]

See also Children's Cancer Web

Site Map


Cutaneous T-Cell Lymphoma (Skin) (6 links)

Cutaneous T-cell lymphoma (CTCL) is a disease in T-Cell lymphocytes (a type of cell in the immune system) become cancerous (malignant) and affect the skin. CTCL is different from other types of lymphoma and other cancers which can involve the skin. CTCL tend to be low-grade - slow growing tumours which can cause symptoms such as itchiness, waxing and/or darkening patches of the skin. As the disease progresses, tumours may form on the skin, in a condition known as Mycosis Fungoides. In an advanced stage of Mycosis Fungoides large numbers of CTCL cells are found in the blood, this is known as the Sezary syndrome.

See also Skin Cancer

Site Map


Primary non-Hodgkin's Lymphoma of Bone (1 link)

Primary non-Hodgkin's lymphoma of bone (PLB) is a rare type of cancer starting in bone, it accounts for about 7% of all primary bone tumours.

Non-Hodgkin's lymphoma (NHL) usually starts in the lymph nodes and lymph glands (part of the immune system). PLB, however, starts in the bone. This is distinct from NHL which started in the lymph notes and then spread to the bones (bone metastases).

The peak age of people diagnosed with PLB is in the 50-60 yr age group, the disease is slightly more common in men than in women. Symptoms are usually bone pain and sometimes swelling. The majority of people with PLB are diagnosed with a single localised tumour. PLB has higher survival rates compared to other types of non-Hodgkin's lymphoma.

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Aids Related Lymphoma (5 links)

Incidence of non-Hodgkin's lymphoma has increased in parallel with the AIDS epidemic. Lymphomas affecting HIV infected people are mostly of the aggressive B-cell types (diffuse large cell, B-immunoblastic, or small non-cleaved Burkitt's / Burkitt's like lymphoma) which are less common in non-HIV infected lymphoma patients. The HIV virus is not thought to a direct cause of lymphoma, rather it weakens the body's defences and may increase susceptibility to other infections such as the Epstein-Barr and HHV-8 viruses which are associated with these types of lymphomas.

See also HIV/AIDS Related Cancers Page

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Primary CNS Lymphoma (4 links)

See also CNS Tumours

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This page last updated: Sat 11 Jan 2003 Home