Cancer Registries

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Cancer Registries (63 links) Breast and Ovarian Cancer Family Registries (National Cancer Institute) the site includes a fact sheet, list of participating registries and other information. California Cancer Registry (USA) A statewide population-based cancer surveillance system founded in 1985. The Web site includes details of the registry and regional offices. The Web site includes data querying, resources for researchers and registrars, publications etc. Cancer Data Registry of Idaho (USA) a population based cancer registry for Idaho State. The site includes annual and special reports, Cancer Data Bulletin and other information. Cancer Registry of Hospital Sao Lucas (Porto Alegre, Brazil) includes incidence reports for 1992 Cancer Registry of Iowa (USA) This state cancer registry is based at the University of Iowa. The Web site gives details of the registry and includes reports about cancer in Iowa in PDF format with incidence and mortality data. Cancer Registry of Limburg - LImburgs KAnker Register (Belgium) The registry covers a population of 779,000. The site includes a detailed report for 1996. English language. Cancer Registry of Norway - Kreftregisteret (Oslo, Norway) The site includes information about the registry which was established in 1952 and detailed cancer statistics for 1955 onwards. Aggregated datasets are available for downloading. Some English language support. Cancer Registry of Rhineland-Palatinate (Mainz, Germany) This registry covers a population of 4 million with about 18,000 cancer cases each year. The Web site has details about the registry and publications. English and German language. Cancer Registry of Slovenia (Ljubljana, Slovenia) The registry was founded in 1950 and is located at the Institute of Oncology, Ljubljana. A national registry, the web page includes contact and publication details. Cancer Surveillance Program of Orange County (California, USA) this registry was established by the University of California Irvine in 1983, since 1985 state legislation has made cancer a reportable disease. The site includes facts and figures, details about CSPOC, and hospitals in the county. CANCERREG-DISCUSS (Email Discussion List) A forum for those involved in cancer registration to discuss and exchange views with colleagues and to promote good practice. Formed in 1997. Childhood Cancer Registry for Belarus (University Children's Medical Center, Minsk, Belarus) The registry is supported by the non-profit Belarus-American Child Health Foundation. 70% of the radioactive fallout from the 1986 Chernobyl Power Plant explosion fell on Belarus. Childhood Cancer Research Group (UK) The CCRG, based in Oxford, maintains the UK National Childhood Tumour Registry. The group is involved in a range of epidemiological and follow-up studies of childhood cancer. This site lists staff, research projects, and publications. Childhood Tumours Registry of Valencia Province - Registro de Tumores Infantiles (Spain) The site includes detailed incidence and survival data for the period 1983-95 using the Birch/Marsden classification scheme. Includes tables and graphs: Spanish language. Childrens' Hospital of Los Angeles Tumor Registry (USA) was established in 1968 and is the largest pediatric cancer registry in California, reporting approximately 275 or more cases annually. This page provides a summary of the registry and contact details. East Anglian Cancer Registry The registry covers Norfolk, Suffolk, Cambridgeshire and Bedfordshire. It is based in Addenbrookes Hospital, Cambridge. The Web site includes details of the registry and incidence data. European Registry Of Hereditary Pancreatitis And Familial Pancreatic Cancer (EUROPAC) The registry is co-ordinated by the University of Liverpool and aims to establish the number of families in Europe with Familial Pancreatic Cancer, investigate possible causative gene mutations and develop screening techniques. Finnish Cancer Registry (Finland) This national registry is based at the Institute for Statistical and Epidemiological Cancer Research, Helsinki. The site includes details of research, case registration, cancer statistics, and software. English language support. Georgia Center for Cancer Statistics (Emory University, USA) founded in 1976 to provide population-based incidence data for a five-county region in the Southeastern USA. The site includes details of GCCS, reports and publication, training programs and links. Georgia Tumor Registrars Association (GATRA) German Childhood Cancer Registry This registry, based in Mainz, covers a population of 13.2 million children with cases for Western Germany from 1980 and for Eastern Germany since 1991. The Web site includes details of research studies and publications. English and German language. Giessen, Arbeitsgruppe zur Koordination Klinischer Krebsregister (Germany) Cancer Registry / Medical informatics. Language: German and English. Gilda Radner Familial Ovarian Cancer Registry (Roswell Park Cancer Institute, USA) The pages of the registry include information for patients and families, newsletter, FAQ etc. Illinois State Cancer Registry (USA) The Web pages include reports in PDF format with statistics for state and county incidence and mortality. Indiana Cancer Registry (USA) The Web site of the Indiana State Department of Health, includes detailed incidence and mortality data produced by the Epidemiology Resource Center. International Association of Cancer Registries IACR is a professional society founded in 1966 aiming to foster the aims and activities of population based cancer registries around the world. The web site includes information about IACR, membership, software, publications, meetings etc. Israel National Cancer Registry (Israel) A population based registry, established in 1960. This is a department of the Public Health Services of the Ministry of Health based in Jerusalem. The Web site includes reports, publications, and details of the Registry’s information service. Izmir Cancer Registry / Izmir Kanser Izlem ve Dentim Merkezi (KIDEM) (Turkey) English and Turkish language. A population based cancer registry for the Izmir province with data since 1992. The web site includes details about the registry and incidence and population data Kentucky Cancer Registry (USA) The KCR site includes yearly cancer incidence reports from 1991, including tables of site of disease by age-group, sex, stage, and county. Krebsregister Rhineland-Palatinate (Mainz, Germany) Large Granular Lymphocyte Leukemia Registry (USA) a national registry located at the H. Lee Moffitt Cancer Center. The registry aims to assist with the diagnosis of LGL leukemia, collect/analyze information on patients with LGL leukemia, and suggest available clinical trials for patients. Maastricht Cancer Registry (Netherlands) The registry covers the province of Limburg, and is based in the Comprehensive Cancer Centre Limburg (IKL). The registry home page includes abstracts and contact information. Massachusetts Cancer Registry (USA) Includes 1982 -1992 statistics. Modena Cancer Registry (Italy) The Web site includes detailed reports of incidence and mortality for the province of Modena, in Italian. National Cancer Registry of Ireland (Eire) The registry was established in 1991 and is based in Cork. This site contains information about the registry, common tumour types, and the annual report of the registry. National Familial Lung Tumor Registry (Johns Hopkins Hospital, USA) The NFLTR was established in 1993 and registers families with lung cancer (where two or more people in a family have been diagnosed with lung cancer). National Familial Pancreas Tumor Registry (Johns Hopkins Hospital, USA) The registry was established in 1994 and aims to establish whether or not neoplasms of the pancreas do occur in families, understanding the genetic basis of these cancers and to provide a resource for researchers. National Program of Cancer Registries (USA) NPCR promotes statewide population based registries that collect uniform data in standardised formats. This site provides information about the program, registry contacts, publication details, schedule of events, and other information. New Hampshire State Cancer Registry (USA) Founded after 1984. The web site includes History and Background, resources, publications, events, links etc. New Jersey - Office of Cancer Epidemiology (USA) This site includes details about the State Cancer Registry, Cancer Surveillance Program, and Applied Cancer Epidemiology Program New South Wales Central Cancer Registry (Australia) The site includes details about the registry, the publications section has references and online reports including detailed Incidence and Mortality for 1994, and various disease specific data. Newfoundland Cancer Treatment and Research Foundation (Canada) The Web site includes details of regional cancer centres, clinical practice guidelines, patient information,and information about the NCTRF Cancer Registry. North American Association of Central Cancer Registries The NAACCR was established in 1987 and is a collaborative umbrella organisation for cancer registries, governmental agencies, professional associations, and other groups interested in enhancing the quality and use of cancer registry data. Northern and Yorkshire Cancer Registry and Information Service (UK) the site includes details of programs and research activities. It also contains an interactive section that lets the user generate customised incidence and mortality reports. Northern Ireland Cancer Registry (Belfast, UK) The Web site includes details about the registry, its aims and objectives, staff, publications, and links. Office for National Statistics (UK) incorporating the former Office of Population Censuses and Surveys Ontario Cancer Registry The Registry records cases of cancer, except non-melanoma skin cancer, with records going back to 1964. The Web site includes details of the registry and it's procedures. Registre Morphologique des Tumeurs (Luxembourg) A population based registry founded in 1986. The Web site is in French and includes details of the registry, research and publications. Rotterdam Cancer Registry (Netherlands) The registry was founded in 1982 and covers the south-western part of The Netherlands. The Web site includes details of research and publications, contact details and links to other registries on the Web. Sarawak Cancer Registry (Malaysia) a population based cancer registry. The web site includes detailed cancer statistics for 1996. Savannah River Region Health Information System A cancer registry covering 25 counties in South Carolina and Georgia. It is located in the Department of Biometry and Epidemiology, Medical University of South Carolina, USA. Scottish Cancer Registry (UK) This is part of the Information and Statistics Division of NHS Scotland, section for Cancer intelligence, record linkage, projects, and professional statistical issues. SEER Cancer Registry Surveillance, Epidemiology, and End Results (NCI) Swedish Cancer Registry - Regionalt Onkologiskt Centrum (Sweden) Swedish language. The site contains information about the national registry, cancer statistics / cancer atlas, publications etc. TCSaglik Bakanligi - Cancer Prevention and Registry (Turkey) A government site of the Cancer Control Department of Health Ministry. The Web site is in the Turkish language. Texas Cancer Data Center (USA) A site funded by the Texas Cancer Council (a state agency). This includes interactive access to detailed cancer statistics and demographic data, publications, Texas health facilities, and community services. Thames Cancer Registry (UK) This population based registry covers a poulation of 14 million people in the London region, part of Eastern and South East regions. The Web site includes details of the registry, cancer groups, conferences and publications. Trent Cancer Registry (UK) The registry covers the East Midlands area of England including South Yorkshire, Lincolnshire, Derbyshire, Nottinghamshire and Leicestershire with a population of 4.8 million. The site includes information about the registry, publications etc. Tumour Registry of Munich (Germany) The registry was founded in 1978 covering Munich and the surrounding areas. It is part of the Comprehensive Cancer Centre at Ludwig-Maximillians-University. The Web site includes English language support and incidence statistics. Tumour Registry of Valencia - Registro de tumores de Valencia (Spain) an adult tumour registry and a childhood cancer registry for the Valencia province. The site includes detailed incidence and survival data for children (1983-95) and adults (1990-94), publications and links. Spanish langauge. Washington State Cancer Registry (USA) The registry was established in 1991. The Web site includes cancer reports in PDF format, fact sheets, and a facility for on-line queries for incidence data for specific cancers. Wyoming Cancer Surveillance Program (USA) a cancer registry for all cancer cases diagnosed or treated in Wyoming since 1962. A program of the Wyoming Department of Health YAHOO - links to cancer registries (12 links at 16/03/99) See also Cancer Epidemiology See also Clinical Trials